Fanconi Hope
Connecting families and raising awareness amongst affected families and the general public.UK research sponsorship. Organisation of clinicians meetings and creation of clinical/research networks. Fundraising and fundraising support.Attendance at Medical events and conferences.Initiation and co-sponsorship of International FA Gene Therapy Working Group.
Activities & Mission
Connecting families and raising awareness amongst affected families and the general public.UK research sponsorship. Organisation of clinicians meetings and creation of clinical/research networks. Fundraising and fundraising support.Attendance at Medical events and conferences.Initiation and co-sponsorship of International FA Gene Therapy Working Group.
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Claim this listing Learn more about premium profiles See a sample profileAreas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £54,779 | £75,014 | 0 / 3 | |||
| 2024 | £70,897 | £96,044 | 0 / 3 | |||
| 2023 | £38,751 | £59,480 | 0 / 10 | |||
| 2022 | £36,843 | £47,971 | 0 / 6 | |||
| 2021 | £27,065 | £20,206 | 0 / 6 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Fanconi Hope
What does Fanconi Hope do?
Connecting families and raising awareness amongst affected families and the general public.UK research sponsorship. Organisation of clinicians meetings and creation of clinical/research networks. Fundraising and fundraising support.Attendance at Medical events and conferences.Initiation and co-sponsorship of International FA Gene Therapy Working Group.
How much income did Fanconi Hope report in 2025?
Fanconi Hope reported total income of £55k and reported expenditure of £75k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Fanconi Hope registered as a charity?
Fanconi Hope was registered with the Charity Commission for England and Wales on 24 November 2008 as charity number 1126894. It has been registered for 18 years.
Who runs Fanconi Hope?
Fanconi Hope is governed by a board of 4 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Fanconi Hope operate?
Fanconi Hope operates in England And Wales, as recorded in its Charity Commission filing.
Is Fanconi Hope a registered charity?
Yes — Fanconi Hope is a registered charity in England and Wales, charity number 1126894.
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Claim this listing Learn more about premium profiles See a sample profileDetails
Registry Information
Trustees
Data & trust
- Register data refreshed
- 13 October 2026
- Methodology
- How metrics are calculated