Fd-UK
Also known as: The Dysautonomia Society of Great Britain
Support children and young adults suffering from Familial Dysautonomia. We pay for physio and therapy and medicine not available under the NHS, financial help for the families who need respite care. Assist with travel to USA FD centre for assessment and treatment. We update sufferers and families with information of research and treatments and information about genetic testing .
Activities & Mission
Support children and young adults suffering from Familial Dysautonomia. We pay for physio and therapy and medicine not available under the NHS, financial help for the families who need respite care. Assist with travel to USA FD centre for assessment and treatment. We update sufferers and families with information of research and treatments and information about genetic testing .
Grants
Fd-UK is a grant-making charity: making grants is its main activity.
- Gives grants to
- organisations and individuals
- Total spending (2025)
- £18,812
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- children and young people, people with disabilities and people of a particular ethnic or racial origin
- What it supports
- education and training, the advancement of health or the saving of lives, disability and other charitable purposes
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £15,332 | £18,812 | 0 / 12 | |||
| 2024 | £19,592 | £18,692 | 0 / 15 | |||
| 2023 | £21,563 | £35,698 | 0 / 10 | |||
| 2022 | £18,100 | £28,800 | 0 / 8 | |||
| 2021 | £20,800 | £27,208 | 0 / 15 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Fd-UK
What does Fd-UK do?
Support children and young adults suffering from Familial Dysautonomia. We pay for physio and therapy and medicine not available under the NHS, financial help for the families who need respite care. Assist with travel to USA FD centre for assessment and treatment. We update sufferers and families with information of research and treatments and information about genetic testing .
How much income did Fd-UK report in 2025?
Fd-UK reported total income of £15k and reported expenditure of £19k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Fd-UK registered as a charity?
Fd-UK was registered with the Charity Commission for England and Wales on 14 September 1982 as charity number 285399. It has been registered for 44 years.
Who runs Fd-UK?
Fd-UK is governed by a board of 3 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Fd-UK operate?
Fd-UK operates in England And Wales, as recorded in its Charity Commission filing.
Is Fd-UK a registered charity?
Yes — Fd-UK is a registered charity in England and Wales, charity number 285399.
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Registry Information
Other notable Beneficiary group charities
Major UK charities in the same primary sector, drawn from the curated priority cohort.
Trustees
Sectors & Classifications
Also Known As
- The Dysautonomia Society of Great Britain
Data & trust
- Register data refreshed
- 2 November 2026
- Methodology
- How metrics are calculated