Fd-UK
Also known as: The Dysautonomia Society of Great Britain
Support children and young adults suffering from Familial Dysautonomia. We pay for physio and therapy and medicine not available under the NHS, financial help for the families who need respite care. Assist with travel to USA FD centre for assessment and treatment. We update sufferers and families with information of research and treatments and information about genetic testing .
Activities & Mission
Support children and young adults suffering from Familial Dysautonomia. We pay for physio and therapy and medicine not available under the NHS, financial help for the families who need respite care. Assist with travel to USA FD centre for assessment and treatment. We update sufferers and families with information of research and treatments and information about genetic testing .
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2024 | £19,592 | £18,692 | 0 / 15 | |||
| 2023 | £21,563 | £35,698 | 0 / 10 | |||
| 2022 | £18,100 | £28,800 | 0 / 8 | |||
| 2021 | £20,800 | £27,208 | 0 / 15 | |||
| 2020 | £21,206 | £28,362 | 0 / 10 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Fd-UK
What does Fd-UK do?
Support children and young adults suffering from Familial Dysautonomia. We pay for physio and therapy and medicine not available under the NHS, financial help for the families who need respite care. Assist with travel to USA FD centre for assessment and treatment. We update sufferers and families with information of research and treatments and information about genetic testing .
How much income did Fd-UK report in 2024?
Fd-UK reported total income of £20k and reported expenditure of £19k for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.
When was Fd-UK registered as a charity?
Fd-UK was registered with the Charity Commission for England and Wales on 14 September 1982 as charity number 285399. It has been registered for 44 years.
Who runs Fd-UK?
Fd-UK is governed by a board of 3 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Fd-UK operate?
Fd-UK operates in England And Wales, as recorded in its Charity Commission filing.
Is Fd-UK a registered charity?
Yes — Fd-UK is a registered charity in England and Wales, charity number 285399.
Details
LONDON
NW2 3RN
Registry Information
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Trustees
Sectors & Classifications
Also Known As
- The Dysautonomia Society of Great Britain
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated