Fibrous Dysplasia Support Society
Also known as: Fdssuk
The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.
Activities & Mission
The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
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Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £14,123 | £1,357 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Fibrous Dysplasia Support Society
What does Fibrous Dysplasia Support Society do?
The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.
How much income did Fibrous Dysplasia Support Society report in 2025?
Fibrous Dysplasia Support Society reported total income of £14k and reported expenditure of £1k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Fibrous Dysplasia Support Society registered as a charity?
Fibrous Dysplasia Support Society was registered with the Charity Commission for England and Wales on 8 November 2017 as charity number 1175622. It has been registered for 9 years.
Who runs Fibrous Dysplasia Support Society?
Fibrous Dysplasia Support Society is governed by a board of 9 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Fibrous Dysplasia Support Society operate?
Fibrous Dysplasia Support Society operates across 2 areas: Scotland and England And Wales.
Is Fibrous Dysplasia Support Society a registered charity?
Yes — Fibrous Dysplasia Support Society is a registered charity in England and Wales, charity number 1175622.
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Registry Information
Trustees
Also Known As
- Fdssuk
Data & trust
- Register data refreshed
- 26 October 2026
- Methodology
- How metrics are calculated