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fibrous dysplasia support society

The charity supports people with disabilities. Fibrous Dysplasia Support Society is a registered charity whose purpose is the advancement of health or the saving of lives. It delivers its work by providing advocacy, advice, or information. The charity is based in Derbyshire and operates in England And Wales and Scotland.


This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

The Fibrous Dysplasia Support Society (FDSS) was formed in 2007 by a group of patients, and their carers, who are affected by Fibrous Dysplasia, McCune Albright Syndrome (MAS) or Cherubism. It exists to provide information and support by sharing our knowledge and experience of the condition with those who would like to know more.

Fundraising

See where Fibrous Dysplasia Support Society is active and find local fundraising opportunities.

Financial Information

Latest Income
£2,092
Latest Expenditure
£2,816

Financial Efficiency

Overall Efficiency 134.6%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 134.6%
Expenditure as % of income

Details

Address
82 Nottingham Road
Somercotes
Alfreton
Derbyshire
DE55 4LY
Registration Date
8 November 2017
Status
Registered

Registry Information

Organisation Number
5105078
Charity Number
1175622

Trustees

HEATHER WALL
JAMIE WATSON
HEATHER DELANEY
Sarah Amy Russell
Steven George Bullock
Stacy Richardson
Joyce Mendoza

Also Known As

  • FDSSUK