Fop Friends
Also known as: Fop Action, Fop Friends of Oliver, Friends of Oliver
FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.
Activities & Mission
FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.
Grants
Fop Friends is a grant-making charity: making grants is its main activity.
- Total spending (2025)
- £107,745
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- other charities or voluntary bodies, other defined groups and the general public
- What it supports
- the advancement of health or the saving of lives
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £102,839 | £107,745 | 0 / 2 | |||
| 2024 | £83,617 | £58,322 | 0 / 0 | |||
| 2024 | £142,840 | £182,893 | 0 / 0 | |||
| 2023 | £231,413 | £141,357 | 0 / 0 | |||
| 2022 | £245,252 | £162,748 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Fop Friends
What does Fop Friends do?
FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.
How much income did Fop Friends report in 2025?
Fop Friends reported total income of £103k and reported expenditure of £108k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Fop Friends registered as a charity?
Fop Friends was registered with the Charity Commission for England and Wales on 15 June 2012 as charity number 1147704. It has been registered for 14 years.
Who runs Fop Friends?
Fop Friends is governed by a board of 6 trustees. The chair of trustees is MR CHRIS BEDFORD-GAY. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Fop Friends operate?
Fop Friends operates across 2 areas: United States and England And Wales.
Is Fop Friends a registered charity?
Yes — Fop Friends is a registered charity in England and Wales, charity number 1147704.
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Registry Information
Trustees
Also governs 1 other charity
Also Known As
- Fop Action
- Fop Friends of Oliver
- Friends of Oliver
- Fop Action
- Fop Friends of Oliver
Data & trust
- Register data refreshed
- 2 November 2026
- Methodology
- How metrics are calculated