Fop Friends
Also known as: Fop Action, Fop Friends of Oliver, Friends of Oliver
FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.
Activities & Mission
FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2024 | £83,617 | £58,322 | 0 / 0 | |||
| 2024 | £142,840 | £182,893 | 0 / 0 | |||
| 2023 | £231,413 | £141,357 | 0 / 0 | |||
| 2022 | £245,252 | £162,748 | 0 / 0 | |||
| 2021 | £179,763 | £136,207 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Fop Friends
What does Fop Friends do?
FOP Friends' aim is to further research into Fibrodysplasia Ossificans Progressiva (FOP) and related conditions by supporting current and future research projects together with supporting families impacted. Activities include supporting fundraisers, holding fund raising events, biennial conferences, family weekend and working with doctors and researcher to find a treatment and cure.
How much income did Fop Friends report in 2024?
Fop Friends reported total income of £84k and reported expenditure of £58k for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.
When was Fop Friends registered as a charity?
Fop Friends was registered with the Charity Commission for England and Wales on 15 June 2012 as charity number 1147704. It has been registered for 14 years.
Who runs Fop Friends?
Fop Friends is governed by a board of 6 trustees. The chair of trustees is MR CHRIS BEDFORD-GAY. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Fop Friends operate?
Fop Friends operates across 2 areas: United States and England And Wales.
Is Fop Friends a registered charity?
Yes — Fop Friends is a registered charity in England and Wales, charity number 1147704.
Details
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M33 3FR
Registry Information
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Also governs 1 other charity
Also Known As
- Fop Action
- Fop Friends of Oliver
- Friends of Oliver
- Fop Action
- Fop Friends of Oliver
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated