Foundation Exploring Skeletal Dysplasias Together (fest)
Operating throughout England and Wales and dedicated to improving the lives of people with skeletal dysplasia and their families. Our work spans advocacy, education, research, community support, and international collaboration. We exist to bridge gaps in policy, practice, and lived experience
Activities & Mission
Operating throughout England and Wales and dedicated to improving the lives of people with skeletal dysplasia and their families. Our work spans advocacy, education, research, community support, and international collaboration. We exist to bridge gaps in policy, practice, and lived experience
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
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Frequently asked questions about Foundation Exploring Skeletal Dysplasias Together (fest)
What does Foundation Exploring Skeletal Dysplasias Together (fest) do?
Operating throughout England and Wales and dedicated to improving the lives of people with skeletal dysplasia and their families. Our work spans advocacy, education, research, community support, and international collaboration. We exist to bridge gaps in policy, practice, and lived experience
When was Foundation Exploring Skeletal Dysplasias Together (fest) registered as a charity?
Foundation Exploring Skeletal Dysplasias Together (fest) was registered with the Charity Commission for England and Wales on 5 November 2025 as charity number 1215632. It has been registered for 1 year.
Who runs Foundation Exploring Skeletal Dysplasias Together (fest)?
Foundation Exploring Skeletal Dysplasias Together (fest) is governed by a board of 5 trustees. The chair of trustees is Stephanie Rachael Birch. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Foundation Exploring Skeletal Dysplasias Together (fest) operate?
Foundation Exploring Skeletal Dysplasias Together (fest) operates in England And Wales, as recorded in its Charity Commission filing.
Is Foundation Exploring Skeletal Dysplasias Together (fest) a registered charity?
Yes — Foundation Exploring Skeletal Dysplasias Together (fest) is a registered charity in England and Wales, charity number 1215632.
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Trustees
Data & trust
- Register data refreshed
- 9 November 2026
- Methodology
- How metrics are calculated