Genetic Alliance UK LTD
Also known as: Genetic Interest Group, Genetic Interest Group Limited, Rare Disease UK, Rduk, Swan UK
Genetic Alliance UK is an alliance of over 230 charities and support groups. We have a 30-year track record of working together to improve the lives of people in the UK with lifelong and complex genetic and rare conditions. We run two long-standing projects, Rare Disease UK and SWAN UK.
Activities & Mission
Genetic Alliance UK is an alliance of over 230 charities and support groups. We have a 30-year track record of working together to improve the lives of people in the UK with lifelong and complex genetic and rare conditions. We run two long-standing projects, Rare Disease UK and SWAN UK.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £885,853 | £705,015 | £623,324 | £222,684 | £190,306 | 11 / 12 |
| 2024 | £780,935 | £862,752 | £751,099 | £41,846 | £24,000 | 17 / 12 |
| 2023 | £741,859 | £769,204 | £674,813 | £123,663 | £92,974 | 16 / 25 |
| 2022 | £713,568 | £762,424 | £667,008 | £151,008 | £151,008 | 17 / 15 |
| 2021 | £939,440 | £808,907 | £703,463 | £199,864 | £160,730 | 17 / 15 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Genetic Alliance UK LTD
What does Genetic Alliance UK LTD do?
Genetic Alliance UK is an alliance of over 230 charities and support groups. We have a 30-year track record of working together to improve the lives of people in the UK with lifelong and complex genetic and rare conditions. We run two long-standing projects, Rare Disease UK and SWAN UK.
How much income did Genetic Alliance UK LTD report in 2025?
Genetic Alliance UK LTD reported total income of £886k and reported expenditure of £705k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Genetic Alliance UK LTD registered as a charity?
Genetic Alliance UK LTD was registered with the Charity Commission for England and Wales on 15 May 2006 as charity number 1114195. It has been registered for 20 years.
Who runs Genetic Alliance UK LTD?
Genetic Alliance UK LTD is governed by a board of 12 trustees. The chair of trustees is Elizabeth Porterfield. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Genetic Alliance UK LTD operate?
Genetic Alliance UK LTD operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is Genetic Alliance UK LTD a registered charity?
Yes — Genetic Alliance UK LTD is a registered charity in England and Wales, charity number 1114195.
Details
The Clock Tower
5 Farleigh Road
Old Weston Road
Flax Bourton
Bristol
Registry Information
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Also governs 2 other charities
Also governs 1 other charity
Also governs 2 other charities
Also Known As
- Genetic Interest Group
- Genetic Interest Group Limited
- Rare Disease UK
- Rduk
- Swan UK
Data & trust
- Register data refreshed
- 14 May 2026
- Methodology
- How metrics are calculated