Global Porphyria Advocacy Coalition
Also known as: Global Porphyria Advocacy Coaliton
The Global Porphyria Advocacy Coalition (GPAC) operates as an umbrella organization for national porphyria patient advocacy organizations, representing all types of porphyria. We work to support all individuals impacted by porphyria and to safeguard their interests. GPAC connects, supports and engages porphyria patients around the world through an integrated international network.
Activities & Mission
The Global Porphyria Advocacy Coalition (GPAC) operates as an umbrella organization for national porphyria patient advocacy organizations, representing all types of porphyria. We work to support all individuals impacted by porphyria and to safeguard their interests. GPAC connects, supports and engages porphyria patients around the world through an integrated international network.
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Learn more about premium profiles See a sample profileAreas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Show all 21 areas of operation Hide areas of operation
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £15,796 | £19,260 | 0 / 10 | |||
| 2024 | £24,853 | £4,313 | 0 / 6 | |||
| 2023 | £8,884 | £6,917 | 0 / 6 | |||
| 2022 | £6,867 | £714 | 0 / 3 | |||
| 2021 | £0 | £0 | 0 / 2 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Global Porphyria Advocacy Coalition
What does Global Porphyria Advocacy Coalition do?
The Global Porphyria Advocacy Coalition (GPAC) operates as an umbrella organization for national porphyria patient advocacy organizations, representing all types of porphyria. We work to support all individuals impacted by porphyria and to safeguard their interests. GPAC connects, supports and engages porphyria patients around the world through an integrated international network.
How much income did Global Porphyria Advocacy Coalition report in 2025?
Global Porphyria Advocacy Coalition reported total income of £16k and reported expenditure of £19k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Global Porphyria Advocacy Coalition registered as a charity?
Global Porphyria Advocacy Coalition was registered with the Charity Commission for England and Wales on 28 May 2020 as charity number 1189694. It has been registered for 6 years.
Who runs Global Porphyria Advocacy Coalition?
Global Porphyria Advocacy Coalition is governed by a board of 4 trustees. The chair of trustees is SUZANNE BURRELL. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Global Porphyria Advocacy Coalition operate?
Global Porphyria Advocacy Coalition operates across 21 areas, including Australia, Austria, Belgium and 18 others. The full list is shown on its profile.
Is Global Porphyria Advocacy Coalition a registered charity?
Yes — Global Porphyria Advocacy Coalition is a registered charity in England and Wales, charity number 1189694.
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Learn more about premium profiles See a sample profileDetails
Registry Information
Trustees
Also Known As
- Global Porphyria Advocacy Coaliton
Data & trust
- Register data refreshed
- 9 November 2026
- Methodology
- How metrics are calculated