Glut1 Deficiency UK
Glut1 Deficiency UK aims to support carers and patients impacted by Glut1DS in the UK and Ireland. Increasing awareness of Glut1 Deficiency Syndrome (Glut1DS)Improved education for families and health professionals in relation to Glut1DS. Advocacy for families and patients impacted by Glut1DS. Support and funding for Glut1DS research
Activities & Mission
Glut1 Deficiency UK aims to support carers and patients impacted by Glut1DS in the UK and Ireland. Increasing awareness of Glut1 Deficiency Syndrome (Glut1DS)Improved education for families and health professionals in relation to Glut1DS. Advocacy for families and patients impacted by Glut1DS. Support and funding for Glut1DS research
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2024 | £4,825 | £2,992 | 0 / 0 | |||
| 2023 | £3,378 | £3,646 | 0 / 3 | |||
| 2022 | £8,524 | £2,582 | 0 / 2 | |||
| 2021 | £11,104 | £1,080 | 0 / 1 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Glut1 Deficiency UK
What does Glut1 Deficiency UK do?
Glut1 Deficiency UK aims to support carers and patients impacted by Glut1DS in the UK and Ireland. Increasing awareness of Glut1 Deficiency Syndrome (Glut1DS)Improved education for families and health professionals in relation to Glut1DS. Advocacy for families and patients impacted by Glut1DS. Support and funding for Glut1DS research
How much income did Glut1 Deficiency UK report in 2024?
Glut1 Deficiency UK reported total income of £5k and reported expenditure of £3k for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.
When was Glut1 Deficiency UK registered as a charity?
Glut1 Deficiency UK was registered with the Charity Commission for England and Wales on 1 December 2020 as charity number 1192599. It has been registered for 6 years.
Who runs Glut1 Deficiency UK?
Glut1 Deficiency UK is governed by a board of 3 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Glut1 Deficiency UK operate?
Glut1 Deficiency UK operates across 3 areas: Ireland, Scotland and England And Wales.
Is Glut1 Deficiency UK a registered charity?
Yes — Glut1 Deficiency UK is a registered charity in England and Wales, charity number 1192599.
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Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
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Registry Information
Trustees
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated