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Glut1 Deficiency UK

Glut1 Deficiency UK aims to support carers and patients impacted by Glut1DS in the UK and Ireland. Increasing awareness of Glut1 Deficiency Syndrome (Glut1DS)Improved education for families and health professionals in relation to Glut1DS. Advocacy for families and patients impacted by Glut1DS. Support and funding for Glut1DS research

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Activities & Mission

Glut1 Deficiency UK aims to support carers and patients impacted by Glut1DS in the UK and Ireland. Increasing awareness of Glut1 Deficiency Syndrome (Glut1DS)Improved education for families and health professionals in relation to Glut1DS. Advocacy for families and patients impacted by Glut1DS. Support and funding for Glut1DS research

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£4,825
Latest Expenditure
£2,992

Financial Efficiency

Overall Efficiency 62.0%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 62.0%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024
£4,825
£2,9920 / 0
2023
£3,378
£3,6460 / 3
2022
£8,524
£2,5820 / 2
2021
£11,104
£1,0800 / 1

Staff column shows: Employees / Volunteers

Frequently asked questions about Glut1 Deficiency UK

What does Glut1 Deficiency UK do?

Glut1 Deficiency UK aims to support carers and patients impacted by Glut1DS in the UK and Ireland. Increasing awareness of Glut1 Deficiency Syndrome (Glut1DS)Improved education for families and health professionals in relation to Glut1DS. Advocacy for families and patients impacted by Glut1DS. Support and funding for Glut1DS research

How much income did Glut1 Deficiency UK report in 2024?

Glut1 Deficiency UK reported total income of £5k and reported expenditure of £3k for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.

When was Glut1 Deficiency UK registered as a charity?

Glut1 Deficiency UK was registered with the Charity Commission for England and Wales on 1 December 2020 as charity number 1192599. It has been registered for 6 years.

Who runs Glut1 Deficiency UK?

Glut1 Deficiency UK is governed by a board of 3 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Glut1 Deficiency UK operate?

Glut1 Deficiency UK operates across 3 areas: Ireland, Scotland and England And Wales.

Is Glut1 Deficiency UK a registered charity?

Yes — Glut1 Deficiency UK is a registered charity in England and Wales, charity number 1192599.

Details

Address
2 East Grimsby
ARBROATH
Angus
DD11 1PA
Registration Date
1 December 2020
Status
Registered

Registry Information

Organisation Number
5169676
Charity Number
1192599

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Trustees

Anna Gorrell
Sheena Cunniffe
Stefanie Plomer

Data & trust

Register data refreshed
14 May 2026
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