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Haemochromatosis International

Also known as: International Alliance of Haemochromatosis Associations, Iaha

Haemochromatosis International (HI) is an alliance of haemochromatosis associations, all are welcome. We aim to advance the health of people with haemochromatosis everywhere. Our priorities are:To improve awareness of haemochromatosis throughout the worldThe geographical expansion of the allianceTo develop an internationally recognised set of guidelines for the treatment of haemochromatosis

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Activities & Mission

Haemochromatosis International (HI) is an alliance of haemochromatosis associations, all are welcome. We aim to advance the health of people with haemochromatosis everywhere. Our priorities are:To improve awareness of haemochromatosis throughout the worldThe geographical expansion of the allianceTo develop an internationally recognised set of guidelines for the treatment of haemochromatosis

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Show all 17 areas of operation

Financial Information

Latest Income
£2,051
Latest Expenditure
£768

Financial Efficiency

Overall Efficiency 37.4%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 37.4%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£2,051
£7680 / 0
2024
£807
£8100 / 0
2023
£6,484
£6070 / 8
2022
£896
£2340 / 0
2021
£408
£1020 / 0

Staff column shows: Employees / Volunteers

Frequently asked questions about Haemochromatosis International

What does Haemochromatosis International do?

Haemochromatosis International (HI) is an alliance of haemochromatosis associations, all are welcome. We aim to advance the health of people with haemochromatosis everywhere. Our priorities are:To improve awareness of haemochromatosis throughout the worldThe geographical expansion of the allianceTo develop an internationally recognised set of guidelines for the treatment of haemochromatosis

How much income did Haemochromatosis International report in 2025?

Haemochromatosis International reported total income of £2k and reported expenditure of £768.00 for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

When was Haemochromatosis International registered as a charity?

Haemochromatosis International was registered with the Charity Commission for England and Wales on 30 March 2016 as charity number 1166280. It has been registered for 10 years.

Who runs Haemochromatosis International?

Haemochromatosis International is governed by a board of 10 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Haemochromatosis International operate?

Haemochromatosis International operates across 17 areas, including Australia, Brazil, Canada and 14 others. The full list is shown on its profile.

Is Haemochromatosis International a registered charity?

Yes — Haemochromatosis International is a registered charity in England and Wales, charity number 1166280.

Details

Address
LONG FIELD HOUSE
STATION ROAD
BRATTON FLEMING
BARNSTAPLE
EX31 4TZ
Registration Date
30 March 2016
Status
Registered

Registry Information

Organisation Number
5070269
Charity Number
1166280

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Trustees

Andres Alejandro Vadillo Canto
Dr Christine O'Leary
Dr Dianne Margaret Prince
Emerencia Teixeira
HOWARD MICHAEL DON
Ketil Toska
Melissa Yssel
MIRIAM FORDE
Paul Michael Johnston
Prof Rob Evans

Also Known As

  • International Alliance of Haemochromatosis Associations
  • Iaha

Data & trust

Register data refreshed
14 May 2026
Report a data issue