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Huntingtons Disease Association

Also known as: The Association to Combat Huntington's Chorea

Relief and treatment of those suffering from or believed to be suffering from Huntington's Disease and to provide support to them and their families. The Association also sponsors research and is involved in disseminating the results of research.

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Activities & Mission

Relief and treatment of those suffering from or believed to be suffering from Huntington's Disease and to provide support to them and their families. The Association also sponsors research and is involved in disseminating the results of research.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£2,531,843
Latest Expenditure
£2,716,817

Financial Efficiency

Program Ratio 94.6%
% of income going directly to charitable activities

Higher than 52% of UK Beneficiary group charities with income £1M to £10M (sample: 3130). How is this calculated?

Overall Efficiency 88.1%
% of expenditure going to programs (vs overhead)

Higher than 23% of UK Beneficiary group charities with income £1M to £10M. How is this calculated?

Administrative Ratio 12.2%
Overhead (fundraising + governance) as % of total expenditure

Lower overhead than 21% of UK Beneficiary group charities with income £1M to £10M. (Lower overhead is generally read as more efficient.) How is this calculated?

Latest Financial Breakdown

Income Sources

Donations & Legacies £1,983,050
Charitable Activities £439,421
Other Trading £48,219
Investments £61,153
Other Income £0

Expenditure Categories

Charitable Expenditure £2,394,774
Raising Funds £318,590
Governance £11,642
Grants to Institutions £0
Other Expenditure £3,453

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£2,531,843
£2,716,817£2,394,774£2,150,787£1,531,70751 / 189
2024
£2,266,817
£2,372,725£2,078,792£2,342,631£1,869,54845 / 5112
2023
£2,003,578
£2,034,566£1,741,916£2,384,123£1,746,36341 / 200
2022
£2,166,325
£1,419,521£1,199,747£2,488,774£1,928,86533 / 5000
2021
£1,880,169
£1,301,314£1,118,510£1,745,907£1,403,76033 / 700

Staff column shows: Employees / Volunteers

Frequently asked questions about Huntingtons Disease Association

What does Huntingtons Disease Association do?

Relief and treatment of those suffering from or believed to be suffering from Huntington's Disease and to provide support to them and their families. The Association also sponsors research and is involved in disseminating the results of research.

How much income did Huntingtons Disease Association report in 2025?

Huntingtons Disease Association reported total income of £2.53m and reported expenditure of £2.72m for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

How efficient is Huntingtons Disease Association?

Huntingtons Disease Association has a program ratio of 94.6%, meaning that share of its income goes directly to charitable activities. This is higher than 52% of UK Beneficiary group charities with income £1M to £10M (sample of 3130 charities). See our methodology for how this is calculated.

When was Huntingtons Disease Association registered as a charity?

Huntingtons Disease Association was registered with the Charity Commission for England and Wales on 20 March 1987 as charity number 296453. It has been registered for 39 years.

Who runs Huntingtons Disease Association?

Huntingtons Disease Association is governed by a board of 10 trustees. The chair of trustees is Prof Hugh Rickards. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Huntingtons Disease Association operate?

Huntingtons Disease Association operates in England And Wales, as recorded in its Charity Commission filing.

Is Huntingtons Disease Association a registered charity?

Yes — Huntingtons Disease Association is a registered charity in England and Wales, charity number 296453.

Details

Address
SUITE 24
THE LIVERPOOL SCIENCE PARK
INNOVATION CENTRE 1
131 MOUNT PLEASANT
LIVERPOOL
L3 5TF
Registration Date
20 March 1987
Status
Registered

Registry Information

Organisation Number
296453
Charity Number
296453

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Trustees

Prof Hugh Rickards Chair
Catherine Lyon
Dalvir Padda
David Rhys Thomas
Dr Akshay Nair
Dr Nayana Swales
NICHOLAS HEATH
Also governs 1 other charity
Sharon Bakewell
Sian Baker
Stephen Duckett

Sectors & Classifications

Also Known As

  • The Association to Combat Huntington's Chorea

Data & trust

Register data refreshed
14 May 2026
Report a data issue