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Huntington's Disease Youth Organisation

Also known as: Hdyo

We provide support and education to young people impacted by Huntington's disease.

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Activities & Mission

We provide support and education to young people impacted by Huntington's disease.

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Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Show all 24 areas of operation

Financial Information

Latest Income
£42,774
Latest Expenditure
£38,767

Financial Efficiency

Expenditure Ratio 90.6%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£42,774
£38,7670 / 30
2024
£34,731
£35,0180 / 30
2023
£77,639
£102,0410 / 30
2022
£83,097
£75,8090 / 30
2021
£104,120
£85,4660 / 30

Staff column shows: Employees / Volunteers

Frequently asked questions about Huntington's Disease Youth Organisation

What does Huntington's Disease Youth Organisation do?

We provide support and education to young people impacted by Huntington's disease.

How much income did Huntington's Disease Youth Organisation report in 2025?

Huntington's Disease Youth Organisation reported total income of £43k and reported expenditure of £39k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

When was Huntington's Disease Youth Organisation registered as a charity?

Huntington's Disease Youth Organisation was registered with the Charity Commission for England and Wales on 7 February 2012 as charity number 1145781. It has been registered for 14 years.

Who runs Huntington's Disease Youth Organisation?

Huntington's Disease Youth Organisation is governed by a board of 8 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Huntington's Disease Youth Organisation operate?

Huntington's Disease Youth Organisation operates across 24 areas, including Australia, Belgium, Brazil and 21 others. The full list is shown on its profile.

Is Huntington's Disease Youth Organisation a registered charity?

Yes — Huntington's Disease Youth Organisation is a registered charity in England and Wales, charity number 1145781.

Details

Contact (address, email, phone)
Website
www.hdyo.org
Registration Date
7 February 2012
Status
Registered

Registry Information

Organisation Number
5023286
Charity Number
1145781

Trustees

Ashley Clarke
Clare Braithwaite
Corey Janke
Dr Bonnie Hennig-Trestman
Dr Emily Leestma
Dr Hayley Hubberstey
Katherine McDonnell
Lauren Byrne

Also Known As

  • Hdyo

Data & trust

Register data refreshed
9 November 2026
Report a data issue