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Ichthyosis Support Group

Also known as: Isg

To provide support for sufferers of ichthyosis and their families. To advance the education of the general public and medical profession in all areas relating to ichthoyosis. To promote research into the management and treatment of ichthyosis. Operates throughout the UK and Republic of Ireland.

Contact Charity

Activities & Mission

To provide support for sufferers of ichthyosis and their families. To advance the education of the general public and medical profession in all areas relating to ichthoyosis. To promote research into the management and treatment of ichthyosis. Operates throughout the UK and Republic of Ireland.

Grants

Ichthyosis Support Group makes grants as part of its work.

Gives grants to
organisations
Total spending (2025)
£123,221
Only charities with income over £500,000 file a separate grants figure.
Who it helps
children and young people, elderly people, people with disabilities and other charities or voluntary bodies
What it supports
general charitable purposes, education and training, the advancement of health or the saving of lives and disability

As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.

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Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£98,494
Latest Expenditure
£123,221

Financial Efficiency

Expenditure Ratio 125.1%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£98,494
£123,2210 / 5
2024
£91,618
£124,3410 / 5
2023
£100,059
£73,8230 / 3
2022
£68,948
£77,9210 / 1
2021
£393,719
£42,0600 / 0

Staff column shows: Employees / Volunteers

Frequently asked questions about Ichthyosis Support Group

What does Ichthyosis Support Group do?

To provide support for sufferers of ichthyosis and their families. To advance the education of the general public and medical profession in all areas relating to ichthoyosis. To promote research into the management and treatment of ichthyosis. Operates throughout the UK and Republic of Ireland.

How much income did Ichthyosis Support Group report in 2025?

Ichthyosis Support Group reported total income of £98k and reported expenditure of £123k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

When was Ichthyosis Support Group registered as a charity?

Ichthyosis Support Group was registered with the Charity Commission for England and Wales on 17 June 2011 as charity number 1142457. It has been registered for 15 years.

Who runs Ichthyosis Support Group?

Ichthyosis Support Group is governed by a board of 9 trustees. The chair of trustees is PAUL WILLIAM WHITEHOUSE. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Ichthyosis Support Group operate?

Ichthyosis Support Group operates across 4 areas: Ireland, Northern Ireland, Scotland and England And Wales.

Is Ichthyosis Support Group a registered charity?

Yes — Ichthyosis Support Group is a registered charity in England and Wales, charity number 1142457.

Details

Contact (address, email, phone)
Registration Date
17 June 2011
Status
Registered

Registry Information

Organisation Number
5018790
Charity Number
1142457

Trustees

PAUL WILLIAM WHITEHOUSE Chair
Baljinder Sohi
Kay Holby
Lee James Lancashire
MARGARET ALDWIN
Mudassar Ulhaq
RAYMOND JAMES ROWLEY
Simon Brown
Tejvir Sohi

Also Known As

  • Isg

Data & trust

Register data refreshed
19 October 2026
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