International Costello Syndrome Support Group
To further the understanding of Costello Syndrome, provide effective Community Support. Providing direct support for families effected by Costello Syndrome, as well as education to both education providers and medical professionals.To try to give relief of those suffering from Costello Syndrome, by establishing a support network for such persons, their families and their Carers.
Activities & Mission
To further the understanding of Costello Syndrome, provide effective Community Support. Providing direct support for families effected by Costello Syndrome, as well as education to both education providers and medical professionals.To try to give relief of those suffering from Costello Syndrome, by establishing a support network for such persons, their families and their Carers.
Grants
International Costello Syndrome Support Group is a grant-making charity: making grants is its main activity.
- Total spending (2025)
- £8,969
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- children and young people and people with disabilities
- What it supports
- disability
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £11,966 | £8,969 | 0 / 0 | |||
| 2024 | £10,384 | £21,224 | 0 / 0 | |||
| 2023 | £13,271 | £18,344 | 0 / 0 | |||
| 2022 | £16,786 | £11,109 | 0 / 0 | |||
| 2021 | £20,730 | £16,150 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about International Costello Syndrome Support Group
What does International Costello Syndrome Support Group do?
To further the understanding of Costello Syndrome, provide effective Community Support. Providing direct support for families effected by Costello Syndrome, as well as education to both education providers and medical professionals.To try to give relief of those suffering from Costello Syndrome, by establishing a support network for such persons, their families and their Carers.
How much income did International Costello Syndrome Support Group report in 2025?
International Costello Syndrome Support Group reported total income of £12k and reported expenditure of £9k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was International Costello Syndrome Support Group registered as a charity?
International Costello Syndrome Support Group was registered with the Charity Commission for England and Wales on 16 March 2001 as charity number 1085605. It has been registered for 25 years.
Who runs International Costello Syndrome Support Group?
International Costello Syndrome Support Group is governed by a board of 4 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does International Costello Syndrome Support Group operate?
International Costello Syndrome Support Group operates in England And Wales, as recorded in its Charity Commission filing.
Is International Costello Syndrome Support Group a registered charity?
Yes — International Costello Syndrome Support Group is a registered charity in England and Wales, charity number 1085605.
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Registry Information
Trustees
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated