International Gaucher Alliance
The IGA is an international umbrella group representing the interest of Gaucher patients and those of non-for-profit Gaucher patient groups as well as rare disease groups throughout the world.
Activities & Mission
The IGA is an international umbrella group representing the interest of Gaucher patients and those of non-for-profit Gaucher patient groups as well as rare disease groups throughout the world.
Grants
International Gaucher Alliance is a grant-making charity: making grants is its main activity.
- Total spending (2025)
- £248,056
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- other charities or voluntary bodies, other defined groups and the general public
- What it supports
- education and training and the advancement of health or the saving of lives
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Learn more about premium profiles See a sample profileAreas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Show all 56 areas of operation Hide areas of operation
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £258,120 | £248,056 | 0 / 50 | |||
| 2024 | £335,442 | £383,772 | 0 / 0 | |||
| 2023 | £395,659 | £365,122 | 0 / 0 | |||
| 2022 | £251,407 | £293,233 | 0 / 1 | |||
| 2021 | £293,567 | £267,491 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about International Gaucher Alliance
What does International Gaucher Alliance do?
The IGA is an international umbrella group representing the interest of Gaucher patients and those of non-for-profit Gaucher patient groups as well as rare disease groups throughout the world.
How much income did International Gaucher Alliance report in 2025?
International Gaucher Alliance reported total income of £258k and reported expenditure of £248k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was International Gaucher Alliance registered as a charity?
International Gaucher Alliance was registered with the Charity Commission for England and Wales on 27 October 2020 as charity number 1192011. It has been registered for 6 years.
Who runs International Gaucher Alliance?
International Gaucher Alliance is governed by a board of 7 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does International Gaucher Alliance operate?
International Gaucher Alliance operates across 56 areas, including Albania, Argentina, Australia and 53 others. The full list is shown on its profile.
Is International Gaucher Alliance a registered charity?
Yes — International Gaucher Alliance is a registered charity in England and Wales, charity number 1192011.
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Learn more about premium profiles See a sample profileDetails
Registry Information
Trustees
Data & trust
- Register data refreshed
- 9 November 2026
- Methodology
- How metrics are calculated