Skip to main content Skip to navigation

International Gaucher Alliance

The IGA is an international umbrella group representing the interest of Gaucher patients and those of non-for-profit Gaucher patient groups as well as rare disease groups throughout the world.

Email Charity

Activities & Mission

The IGA is an international umbrella group representing the interest of Gaucher patients and those of non-for-profit Gaucher patient groups as well as rare disease groups throughout the world.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Show all 56 areas of operation

Financial Information

Latest Income
£139
Latest Expenditure
£33,535

Financial Efficiency

Overall Efficiency 24125.9%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 24125.9%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2023.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2023
£395,659
£365,1220 / 0
2022
£251,407
£293,2330 / 1
2021
£293,567
£267,4910 / 0

Staff column shows: Employees / Volunteers

Frequently asked questions about International Gaucher Alliance

What does International Gaucher Alliance do?

The IGA is an international umbrella group representing the interest of Gaucher patients and those of non-for-profit Gaucher patient groups as well as rare disease groups throughout the world.

How much income did International Gaucher Alliance report in 2023?

International Gaucher Alliance reported total income of £396k and reported expenditure of £365k for the financial year ending 2023, based on the most recent annual return filed with the Charity Commission.

When was International Gaucher Alliance registered as a charity?

International Gaucher Alliance was registered with the Charity Commission for England and Wales on 27 October 2020 as charity number 1192011. It has been registered for 6 years.

Who runs International Gaucher Alliance?

International Gaucher Alliance is governed by a board of 9 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does International Gaucher Alliance operate?

International Gaucher Alliance operates across 56 areas, including Albania, Argentina, Australia and 53 others. The full list is shown on its profile.

Is International Gaucher Alliance a registered charity?

Yes — International Gaucher Alliance is a registered charity in England and Wales, charity number 1192011.

Details

Address
86-90 Paul Street
London
EC2A 4NE
Registration Date
27 October 2020
Status
Registered

Registry Information

Organisation Number
5160170
Charity Number
1192011

Is this your charity?

Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.

Claim this listing Learn more about premium profiles

Trustees

Aimee-Kate Bosch
Andre Balzekiene
Aviva Rosenberg
Christine White
Diana Paulina Pena Aragon
Irena Znidar
Patricia Lucki Zifonsky
Raul Chertkoff
Suyog Sathe

Data & trust

Register data refreshed
14 May 2026
Report a data issue