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International Gaucher Alliance

The IGA is an international umbrella group representing the interest of Gaucher patients and those of non-for-profit Gaucher patient groups as well as rare disease groups throughout the world.

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Activities & Mission

The IGA is an international umbrella group representing the interest of Gaucher patients and those of non-for-profit Gaucher patient groups as well as rare disease groups throughout the world.

Grants

International Gaucher Alliance is a grant-making charity: making grants is its main activity.

Total spending (2025)
£248,056
Only charities with income over £500,000 file a separate grants figure.
Who it helps
other charities or voluntary bodies, other defined groups and the general public
What it supports
education and training and the advancement of health or the saving of lives

As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.

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Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Show all 56 areas of operation

Financial Information

Latest Income
£258,120
Latest Expenditure
£248,056

Financial Efficiency

Expenditure Ratio 96.1%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£258,120
£248,0560 / 50
2024
£335,442
£383,7720 / 0
2023
£395,659
£365,1220 / 0
2022
£251,407
£293,2330 / 1
2021
£293,567
£267,4910 / 0

Staff column shows: Employees / Volunteers

Frequently asked questions about International Gaucher Alliance

What does International Gaucher Alliance do?

The IGA is an international umbrella group representing the interest of Gaucher patients and those of non-for-profit Gaucher patient groups as well as rare disease groups throughout the world.

How much income did International Gaucher Alliance report in 2025?

International Gaucher Alliance reported total income of £258k and reported expenditure of £248k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

When was International Gaucher Alliance registered as a charity?

International Gaucher Alliance was registered with the Charity Commission for England and Wales on 27 October 2020 as charity number 1192011. It has been registered for 6 years.

Who runs International Gaucher Alliance?

International Gaucher Alliance is governed by a board of 7 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does International Gaucher Alliance operate?

International Gaucher Alliance operates across 56 areas, including Albania, Argentina, Australia and 53 others. The full list is shown on its profile.

Is International Gaucher Alliance a registered charity?

Yes — International Gaucher Alliance is a registered charity in England and Wales, charity number 1192011.

Details

Contact (address, email, phone)
Registration Date
27 October 2020
Status
Registered

Registry Information

Organisation Number
5160170
Charity Number
1192011

Trustees

Andre Balzekiene
Aviva Rosenberg
Diana Paulina Pena Aragon
Irena Znidar
Patricia Lucki Zifonsky
Raul Chertkoff
Suyog Sathe

Data & trust

Register data refreshed
9 November 2026
Report a data issue