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international niemann-pick disease alliance

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Activities & Mission

A network for non-profit organisations associated with the group of rare diseases known as Niemann-Pick Disease (NPD). The organisation aims to facilitate progress in research and understanding, family support and information services by providing an international forum. The organisation meets by teleconference every three months and bi-annually face to face.

Fundraising

See where International Niemann-Pick Disease Alliance is active and find local fundraising opportunities.

Financial Information

Latest Income
£214,845
Latest Expenditure
£89,725

Financial Efficiency

Overall Efficiency 41.8%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 41.8%
Expenditure as % of income

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£214,845£89,7250 / 5
2023£72,315£57,6160 / 5
2022£20,112£10,3930 / 5
2021£41,586£8,0520 / 5
2020£35,428£33,8140 / 5

Staff column shows: Employees / Volunteers

Details

Address
C/O NIEMANN-PICK DISEASE ALLIANCE
SUITE 2
VERMONT HOUSE
WASHINGTON
TYNE & WEAR
Registration Date
20 December 2012
Status
Registered

Registry Information

Organisation Number
5032347
Charity Number
1150256

Trustees

Dr PETER HENGGELER
TONI ANGELA MATHIESON
CHRISTOPH POINCILIT
JIM GREEN

Sectors & Classifications

Also Known As

  • INPDA