International Niemann-Pick Disease Alliance
Also known as: Inpda
A network for non-profit organisations associated with the group of rare diseases known as Niemann-Pick Disease (NPD). The organisation aims to facilitate progress in research and understanding, family support and information services by providing an international forum. The organisation meets by teleconference every three months and bi-annually face to face.
Activities & Mission
A network for non-profit organisations associated with the group of rare diseases known as Niemann-Pick Disease (NPD). The organisation aims to facilitate progress in research and understanding, family support and information services by providing an international forum. The organisation meets by teleconference every three months and bi-annually face to face.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Show all 15 areas of operation Hide areas of operation
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £186,520 | £184,220 | 0 / 5 | |||
| 2024 | £214,845 | £89,725 | 0 / 5 | |||
| 2023 | £72,315 | £57,616 | 0 / 5 | |||
| 2022 | £20,112 | £10,393 | 0 / 5 | |||
| 2021 | £41,586 | £8,052 | 0 / 5 |
Staff column shows: Employees / Volunteers
Frequently asked questions about International Niemann-Pick Disease Alliance
What does International Niemann-Pick Disease Alliance do?
A network for non-profit organisations associated with the group of rare diseases known as Niemann-Pick Disease (NPD). The organisation aims to facilitate progress in research and understanding, family support and information services by providing an international forum. The organisation meets by teleconference every three months and bi-annually face to face.
How much income did International Niemann-Pick Disease Alliance report in 2025?
International Niemann-Pick Disease Alliance reported total income of £187k and reported expenditure of £184k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was International Niemann-Pick Disease Alliance registered as a charity?
International Niemann-Pick Disease Alliance was registered with the Charity Commission for England and Wales on 20 December 2012 as charity number 1150256. It has been registered for 14 years.
Who runs International Niemann-Pick Disease Alliance?
International Niemann-Pick Disease Alliance is governed by a board of 4 trustees. The chair of trustees is Sandra Cowie. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does International Niemann-Pick Disease Alliance operate?
International Niemann-Pick Disease Alliance operates across 15 areas, including Argentina, Australia, Brazil and 12 others. The full list is shown on its profile.
Is International Niemann-Pick Disease Alliance a registered charity?
Yes — International Niemann-Pick Disease Alliance is a registered charity in England and Wales, charity number 1150256.
Details
NORTH SANDS BUSINESS CENTRE
Liberty Way, Roker
SUNDERLAND
SR6 0QA
Registry Information
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Trustees
Also governs 1 other charity
Sectors & Classifications
Also Known As
- Inpda
Data & trust
- Register data refreshed
- 14 May 2026
- Methodology
- How metrics are calculated