international niemann-pick disease registry

Activities & Mission

The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.

Fundraising

See where International Niemann-Pick Disease Registry is active and find local fundraising opportunities.

Financial Information