international niemann-pick disease registry
The charity supports other defined groups. International Niemann-Pick Disease Registry is a registered charity whose purpose is education and training. It delivers its work by providing services. The charity is based in Sunderland and operates in England And Wales.
This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.
Activities & Mission
The INPDR aims to increase understanding of Niemann-Pick Disease through the collection of patient data on a global scale. It will encourage efficient and timely diagnosis, improve understanding of disease progression and influence patient care, whilst supporting global research efforts, facilitating recruitment of clinical studies and supporting development/access to new and emerging therapies.
Fundraising
See where International Niemann-Pick Disease Registry is active and find local fundraising opportunities.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2024 | £131,498 | £307,686 | 0 / 6 | |||
| 2023 | £173,361 | £415,907 | 0 / 2 | |||
| 2022 | £456,982 | £279,140 | 0 / 2 | |||
| 2021 | £390,375 | £265,255 | 0 / 3 | |||
| 2020 | £266,804 | £139,399 | 0 / 2 |
Staff column shows: Employees / Volunteers
Details
NORTH SANDS BUSINESS CENTRE
LIBERTY WAY
SUNDERLAND
SR6 0QA
Registry Information
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