International Xlh Alliance
Also known as: Xlh UK
To unite and amplify the patient voice by supporting x-linked hypophosphataemia (XLH) groups worldwide and to set a global standard of care and research that ensures all patients receive the care that meets their individual needs.
Activities & Mission
To unite and amplify the patient voice by supporting x-linked hypophosphataemia (XLH) groups worldwide and to set a global standard of care and research that ensures all patients receive the care that meets their individual needs.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Show all 31 areas of operation Hide areas of operation
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2023.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2023 | £82,141 | £66,295 | 0 / 26 | |||
| 2021 | £66,727 | £578 | 0 / 3 |
Staff column shows: Employees / Volunteers
Frequently asked questions about International Xlh Alliance
What does International Xlh Alliance do?
To unite and amplify the patient voice by supporting x-linked hypophosphataemia (XLH) groups worldwide and to set a global standard of care and research that ensures all patients receive the care that meets their individual needs.
How much income did International Xlh Alliance report in 2023?
International Xlh Alliance reported total income of £82k and reported expenditure of £66k for the financial year ending 2023, based on the most recent annual return filed with the Charity Commission.
When was International Xlh Alliance registered as a charity?
International Xlh Alliance was registered with the Charity Commission for England and Wales on 12 April 2019 as charity number 1182964. It has been registered for 7 years.
Who runs International Xlh Alliance?
International Xlh Alliance is governed by a board of 3 trustees. The chair of trustees is Oliver Gardiner. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does International Xlh Alliance operate?
International Xlh Alliance operates across 31 areas, including Australia, Austria, Belgium and 28 others. The full list is shown on its profile.
Is International Xlh Alliance a registered charity?
Yes — International Xlh Alliance is a registered charity in England and Wales, charity number 1182964.
Details
CHATHAM
Kent
ME5 9EJ
Registry Information
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Also Known As
- Xlh UK
Data & trust
- Register data refreshed
- 14 May 2026
- Methodology
- How metrics are calculated