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Intractable Epilepsy

Also known as: Intractable Epilepsy Ltd

The charity funds prescription costs of medicinal cannabis for those with Intractable Epilepsy when prescribed by a specialist clinician on the GMC register and in line with NHS guidance. The full criteria to qualify for funding are set out in the charity grants policy. Prescription costs will be met strictly in line with our charitable objects.

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Activities & Mission

The charity funds prescription costs of medicinal cannabis for those with Intractable Epilepsy when prescribed by a specialist clinician on the GMC register and in line with NHS guidance. The full criteria to qualify for funding are set out in the charity grants policy. Prescription costs will be met strictly in line with our charitable objects.

Grants

Intractable Epilepsy is a grant-making charity: making grants is its main activity.

Gives grants to
individuals
Total spending (2024)
£1,994
Only charities with income over £500,000 file a separate grants figure.
Who it helps
children and young people and the general public
What it supports
the advancement of health or the saving of lives and disability

As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.

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Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£1,537
Latest Expenditure
£1,994

Financial Efficiency

Expenditure Ratio 129.7%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024
£15,497
£28,1570 / 10
2023
£27,481
£14,4050 / 10

Staff column shows: Employees / Volunteers

Frequently asked questions about Intractable Epilepsy

What does Intractable Epilepsy do?

The charity funds prescription costs of medicinal cannabis for those with Intractable Epilepsy when prescribed by a specialist clinician on the GMC register and in line with NHS guidance. The full criteria to qualify for funding are set out in the charity grants policy. Prescription costs will be met strictly in line with our charitable objects.

How much income did Intractable Epilepsy report in 2024?

Intractable Epilepsy reported total income of £15k and reported expenditure of £28k for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.

When was Intractable Epilepsy registered as a charity?

Intractable Epilepsy was registered with the Charity Commission for England and Wales on 6 June 2022 as charity number 1199192. It has been registered for 4 years.

Who runs Intractable Epilepsy?

Intractable Epilepsy is governed by a board of 4 trustees. The chair of trustees is Graham Howard Levy. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Intractable Epilepsy operate?

Intractable Epilepsy operates across 3 areas: Northern Ireland, Scotland and England And Wales.

Is Intractable Epilepsy a registered charity?

Yes — Intractable Epilepsy is a registered charity in England and Wales, charity number 1199192.

Details

Contact (address, email, phone)
Registration Date
6 June 2022
Status
Registered

Registry Information

Organisation Number
5189640
Charity Number
1199192

Trustees

Graham Howard Levy Chair
Christopher Tasker
Joanne Marjorie Justine Griffiths
Karen Gray

Also Known As

  • Intractable Epilepsy
  • Intractable Epilepsy Ltd

Data & trust

Register data refreshed
26 October 2026
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