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keep me breathing

The charity supports the general public. Keep Me Breathing is a registered charity whose purpose is general charitable purposes. It delivers its work by making grants to organisations. The charity is based in Hove and operates in England And Wales.


This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS) a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS.

Fundraising

See where Keep Me Breathing is active and find local fundraising opportunities.

Financial Information

Latest Income
£345,092
Latest Expenditure
£32,103

Financial Efficiency

Overall Efficiency 9.3%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 9.3%
Expenditure as % of income

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2023£345,092£32,1030 / 18

Staff column shows: Employees / Volunteers