Keep Me Breathing
Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS) a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS.
Activities & Mission
Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS) a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS.
Grants
Keep Me Breathing is a grant-making charity: making grants is its main activity.
- Gives grants to
- organisations
- Total spending (2025)
- £174,625
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- the general public
- What it supports
- general charitable purposes and the advancement of health or the saving of lives
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £134,340 | £174,625 | 0 / 50 | |||
| 2023 | £345,092 | £32,103 | 0 / 18 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Keep Me Breathing
What does Keep Me Breathing do?
Keep Me Breathing is a patient, scientific and engineering led organisation which helps and supports people with Congenital Central Hypoventilation Syndrome (CCHS) a rare genetic disease. It helps people who suffer from CCHS and we receive worldwide enquiries. We are involved in research with the University of Cambridge Consulting Society to find a treatment for CCHS.
How much income did Keep Me Breathing report in 2025?
Keep Me Breathing reported total income of £134k and reported expenditure of £175k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Keep Me Breathing registered as a charity?
Keep Me Breathing was registered with the Charity Commission for England and Wales on 27 January 2023 as charity number 1201757. It has been registered for 3 years.
Who runs Keep Me Breathing?
Keep Me Breathing is governed by a board of 4 trustees. The chair of trustees is James Oakley. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Keep Me Breathing operate?
Keep Me Breathing operates in England And Wales, as recorded in its Charity Commission filing.
Is Keep Me Breathing a registered charity?
Yes — Keep Me Breathing is a registered charity in England and Wales, charity number 1201757.
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Registry Information
Trustees
Data & trust
- Register data refreshed
- 26 October 2026
- Methodology
- How metrics are calculated