Kleefstra Syndrome UK
Also known as: Kleefstrasyndrome.org
The relief of Kleefstra Syndrome by: increasing awareness of Kleefstra Syndrome in the UK; promoting research into the causes, effects, treatment and management of Kleefstra Syndrome and disseminating and publishing the useful results of any such research; and providing help and support to families affected by the Syndrome
Activities & Mission
The relief of Kleefstra Syndrome by: increasing awareness of Kleefstra Syndrome in the UK; promoting research into the causes, effects, treatment and management of Kleefstra Syndrome and disseminating and publishing the useful results of any such research; and providing help and support to families affected by the Syndrome
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £15,339 | £2,012 | 0 / 5 | |||
| 2024 | £3,587 | £13,271 | 0 / 5 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Kleefstra Syndrome UK
What does Kleefstra Syndrome UK do?
The relief of Kleefstra Syndrome by: increasing awareness of Kleefstra Syndrome in the UK; promoting research into the causes, effects, treatment and management of Kleefstra Syndrome and disseminating and publishing the useful results of any such research; and providing help and support to families affected by the Syndrome
How much income did Kleefstra Syndrome UK report in 2025?
Kleefstra Syndrome UK reported total income of £15k and reported expenditure of £2k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Kleefstra Syndrome UK registered as a charity?
Kleefstra Syndrome UK was registered with the Charity Commission for England and Wales on 30 April 2024 as charity number 1208059. It has been registered for 2 years.
Who runs Kleefstra Syndrome UK?
Kleefstra Syndrome UK is governed by a board of 7 trustees. The chair of trustees is Wendy Elizabeth Hocking. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Kleefstra Syndrome UK operate?
Kleefstra Syndrome UK operates in England And Wales, as recorded in its Charity Commission filing.
Is Kleefstra Syndrome UK a registered charity?
Yes — Kleefstra Syndrome UK is a registered charity in England and Wales, charity number 1208059.
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Registry Information
Trustees
Also Known As
- Kleefstrasyndrome.org
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated