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leber's hereditary optic neuropathy society

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Activities & Mission

We are a self-help support group for families affected by LHON across the British Isles. Through our membership we aim to identify as many affected families as possible and build a register of people willing to take part in medical research. We provide up-to-date information on LHON and current research topics.

Fundraising

See where Leber's Hereditary Optic Neuropathy Society is active and find local fundraising opportunities.

Financial Information

Latest Income
£11,062
Latest Expenditure
£2,916

Financial Efficiency

Overall Efficiency 26.4%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 26.4%
Expenditure as % of income

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£11,062£2,9160 / 1
2023£4,247£13,8270 / 0
2022£21,448£1520 / 4
2021£1,108£1230 / 4
2020£8,499£1700 / 0

Staff column shows: Employees / Volunteers

Details

Address
Community Base
133 Queens Road
Brighton
East Sussex
BN1 3XG
Registration Date
28 May 2014
Status
Registered

Registry Information

Organisation Number
5047595
Charity Number
1157206

Trustees

RUSSELL GEORGE WINSTON WHEELER
Charlotte Isabella McMillan
Diane Louise Watson

Sectors & Classifications

Also Known As

  • LHON SOCIETY