Leber's Hereditary Optic Neuropathy Society
Also known as: Lhon Society
We are a self-help support group for families affected by LHON across the British Isles. Through our membership we aim to identify as many affected families as possible and build a register of people willing to take part in medical research. We provide up-to-date information on LHON and current research topics.
Activities & Mission
We are a self-help support group for families affected by LHON across the British Isles. Through our membership we aim to identify as many affected families as possible and build a register of people willing to take part in medical research. We provide up-to-date information on LHON and current research topics.
Grants
Leber's Hereditary Optic Neuropathy Society makes grants as part of its work.
- Gives grants to
- organisations
- Total spending (2025)
- £15,724
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- people with disabilities
- What it supports
- the advancement of health or the saving of lives and disability
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £2,265 | £15,724 | 0 / 6 | |||
| 2024 | £11,062 | £2,916 | 0 / 1 | |||
| 2023 | £4,247 | £13,827 | 0 / 0 | |||
| 2022 | £21,448 | £152 | 0 / 4 | |||
| 2021 | £1,108 | £123 | 0 / 4 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Leber's Hereditary Optic Neuropathy Society
What does Leber's Hereditary Optic Neuropathy Society do?
We are a self-help support group for families affected by LHON across the British Isles. Through our membership we aim to identify as many affected families as possible and build a register of people willing to take part in medical research. We provide up-to-date information on LHON and current research topics.
How much income did Leber's Hereditary Optic Neuropathy Society report in 2025?
Leber's Hereditary Optic Neuropathy Society reported total income of £2k and reported expenditure of £16k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Leber's Hereditary Optic Neuropathy Society registered as a charity?
Leber's Hereditary Optic Neuropathy Society was registered with the Charity Commission for England and Wales on 28 May 2014 as charity number 1157206. It has been registered for 12 years.
Who runs Leber's Hereditary Optic Neuropathy Society?
Leber's Hereditary Optic Neuropathy Society is governed by a board of 3 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Leber's Hereditary Optic Neuropathy Society operate?
Leber's Hereditary Optic Neuropathy Society operates across 4 areas: Ireland, Isle Of Man, Northern Ireland and Scotland.
Is Leber's Hereditary Optic Neuropathy Society a registered charity?
Yes — Leber's Hereditary Optic Neuropathy Society is a registered charity in England and Wales, charity number 1157206.
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Registry Information
Trustees
Also Known As
- Lhon Society
Data & trust
- Register data refreshed
- 2 November 2026
- Methodology
- How metrics are calculated