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leber's hereditary optic neuropathy society

The charity supports people with disabilities. Leber's Hereditary Optic Neuropathy Society is a registered charity whose purpose is the advancement of health or the saving of lives. It delivers its work by making grants to organisations. The charity is based in East Sussex and operates in Ireland, Scotland, and various other locations.


This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

We are a self-help support group for families affected by LHON across the British Isles. Through our membership we aim to identify as many affected families as possible and build a register of people willing to take part in medical research. We provide up-to-date information on LHON and current research topics.

Fundraising

See where Leber's Hereditary Optic Neuropathy Society is active and find local fundraising opportunities.

Financial Information

Latest Income
£11,062
Latest Expenditure
£2,916

Financial Efficiency

Overall Efficiency 26.4%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 26.4%
Expenditure as % of income

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£11,062£2,9160 / 1
2023£4,247£13,8270 / 0
2022£21,448£1520 / 4
2021£1,108£1230 / 4
2020£8,499£1700 / 0

Staff column shows: Employees / Volunteers