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Lipodystrophy UK

Lipodystrophy UK is a dedicated UK patient group set up to support people with Lipodystrophy. Our mission is to raise awareness of Lipodystrophy, support those who may be affected by Lipodystrophy and advocate for excellent clinical care and scientific research into these conditions.

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Activities & Mission

Lipodystrophy UK is a dedicated UK patient group set up to support people with Lipodystrophy. Our mission is to raise awareness of Lipodystrophy, support those who may be affected by Lipodystrophy and advocate for excellent clinical care and scientific research into these conditions.

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Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£6,313
Latest Expenditure
£25,569

Financial Efficiency

Expenditure Ratio 405.0%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£6,313
£25,5690 / 0
2024
£27,554
£5250 / 0
2023
£29,204
£27,1390 / 0
2022
£918
£1,4870 / 0
2021
£941
£2760 / 5

Staff column shows: Employees / Volunteers

Frequently asked questions about Lipodystrophy UK

What does Lipodystrophy UK do?

Lipodystrophy UK is a dedicated UK patient group set up to support people with Lipodystrophy. Our mission is to raise awareness of Lipodystrophy, support those who may be affected by Lipodystrophy and advocate for excellent clinical care and scientific research into these conditions.

How much income did Lipodystrophy UK report in 2025?

Lipodystrophy UK reported total income of £6k and reported expenditure of £26k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

When was Lipodystrophy UK registered as a charity?

Lipodystrophy UK was registered with the Charity Commission for England and Wales on 30 October 2017 as charity number 1175462. It has been registered for 9 years.

Who runs Lipodystrophy UK?

Lipodystrophy UK is governed by a board of 3 trustees. The chair of trustees is Dr Rebecca Sanders. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Lipodystrophy UK operate?

Lipodystrophy UK operates in England And Wales, as recorded in its Charity Commission filing.

Is Lipodystrophy UK a registered charity?

Yes — Lipodystrophy UK is a registered charity in England and Wales, charity number 1175462.

Details

Contact (address, email, phone)
Registration Date
30 October 2017
Status
Registered

Registry Information

Organisation Number
5111931
Charity Number
1175462

Trustees

Dr Rebecca Sanders Chair
Anna Marie Greenaway
Siobhan Patricia Dunn

Data & trust

Register data refreshed
19 October 2026
Report a data issue