Marfan Trust
Marfan Trust raises funds to support medical research so that more is know about Marfan syndrome and its management. The results of our internationally recognised research enables doctors and surgeons to provide better treatment for patients in the short and long term. Our helpline and website www.marfantrust.org provide information. An annual supporter information day is held in October.
Activities & Mission
Marfan Trust raises funds to support medical research so that more is know about Marfan syndrome and its management. The results of our internationally recognised research enables doctors and surgeons to provide better treatment for patients in the short and long term. Our helpline and website www.marfantrust.org provide information. An annual supporter information day is held in October.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
The Commission record shows this related event on the register:
- Asset transfer in in 2024 — The Marfan Trust (organisation 328070)
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £178,887 | £300,520 | 0 / 28 | |||
| 2024 | £287,083 | £246,011 | 0 / 28 | |||
| 2023 | £631,283 | £31,059 | £30,851 | £600,224 | £600,224 | 3 / 28 |
| 2022 | £0 | £0 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Marfan Trust
What does Marfan Trust do?
Marfan Trust raises funds to support medical research so that more is know about Marfan syndrome and its management. The results of our internationally recognised research enables doctors and surgeons to provide better treatment for patients in the short and long term. Our helpline and website www.marfantrust.org provide information. An annual supporter information day is held in October.
How much income did Marfan Trust report in 2025?
Marfan Trust reported total income of £179k and reported expenditure of £301k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Marfan Trust registered as a charity?
Marfan Trust was registered with the Charity Commission for England and Wales on 5 May 2022 as charity number 1198847. It has been registered for 4 years.
Who runs Marfan Trust?
Marfan Trust is governed by a board of 9 trustees. The chair of trustees is Dr Anne Child. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Marfan Trust operate?
Marfan Trust operates across 3 areas: Ireland, Scotland and England And Wales.
Is Marfan Trust a registered charity?
Yes — Marfan Trust is a registered charity in England and Wales, charity number 1198847.
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Registry Information
Trustees
Data & trust
- Register data refreshed
- 2 November 2026
- Methodology
- How metrics are calculated