Myotonic Dystrophy Support Group
To offer assistance, support and information to those people affected by Myotonic Dystrophy
Activities & Mission
To offer assistance, support and information to those people affected by Myotonic Dystrophy
Grants
Myotonic Dystrophy Support Group makes grants as part of its work.
- Gives grants to
- organisations and individuals
- Total spending (2025)
- £183,742
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- children and young people, elderly people, people with disabilities, other charities or voluntary bodies and the general public
- What it supports
- general charitable purposes, education and training, the advancement of health or the saving of lives and disability
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
The Commission record shows this related event on the register:
- Asset transfer in in 2011 — Myotonic Dystrophy Support Group (organisation 3948893)
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £135,609 | £183,742 | 0 / 5 | |||
| 2024 | £336,393 | £128,492 | 0 / 7 | |||
| 2023 | £258,791 | £117,901 | 0 / 10 | |||
| 2022 | £109,671 | £63,155 | 0 / 8 | |||
| 2021 | £216,299 | £150,968 | 0 / 20 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Myotonic Dystrophy Support Group
What does Myotonic Dystrophy Support Group do?
To offer assistance, support and information to those people affected by Myotonic Dystrophy
How much income did Myotonic Dystrophy Support Group report in 2025?
Myotonic Dystrophy Support Group reported total income of £136k and reported expenditure of £184k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Myotonic Dystrophy Support Group registered as a charity?
Myotonic Dystrophy Support Group was registered with the Charity Commission for England and Wales on 25 February 2010 as charity number 1134499. It has been registered for 16 years.
Who runs Myotonic Dystrophy Support Group?
Myotonic Dystrophy Support Group is governed by a board of 7 trustees. The chair of trustees is MICHAEL WALKER. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Myotonic Dystrophy Support Group operate?
Myotonic Dystrophy Support Group operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is Myotonic Dystrophy Support Group a registered charity?
Yes — Myotonic Dystrophy Support Group is a registered charity in England and Wales, charity number 1134499.
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Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
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Registry Information
Trustees
Data & trust
- Register data refreshed
- 26 October 2026
- Methodology
- How metrics are calculated