Myotubular Trust
The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy.The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date.
Activities & Mission
The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy.The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date.
Grants
Myotubular Trust is a grant-making charity: making grants is its main activity.
- Gives grants to
- organisations and individuals
- Total spending (2025)
- £314,670
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- children and young people and people with disabilities
- What it supports
- the advancement of health or the saving of lives and disability
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £146,956 | £314,670 | 0 / 0 | |||
| 2024 | £138,416 | £148,309 | 0 / 0 | |||
| 2023 | £117,511 | £70,876 | 0 / 0 | |||
| 2022 | £147,462 | £97,944 | 0 / 0 | |||
| 2021 | £144,770 | £112,630 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Myotubular Trust
What does Myotubular Trust do?
The relief of disability and the extension of life for those suffering from myotubular myopathy, by promoting the study of, and research into, the treatment and cure of the muscle weakness caused by myotubular myopathy.The charity was incorporated in 2010 and the old charity number was 1113809 which should be referred to for activity up to this date.
How much income did Myotubular Trust report in 2025?
Myotubular Trust reported total income of £147k and reported expenditure of £315k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Myotubular Trust registered as a charity?
Myotubular Trust was registered with the Charity Commission for England and Wales on 29 July 2010 as charity number 1137177. It has been registered for 16 years.
Who runs Myotubular Trust?
Myotubular Trust is governed by a board of 6 trustees. The chair of trustees is ANDREW LENNOX. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Myotubular Trust operate?
Myotubular Trust operates in England And Wales, as recorded in its Charity Commission filing.
Is Myotubular Trust a registered charity?
Yes — Myotubular Trust is a registered charity in England and Wales, charity number 1137177.
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Registry Information
Trustees
Data & trust
- Register data refreshed
- 13 October 2026
- Methodology
- How metrics are calculated