Noonan Syndrome Association
Also known as: Nsa
The SUPPORT of those affected by Noonan Syndrome and related conditions (on the Ras/MAPK Pathway) by events, social media, publications etc.RESEARCH to advance improvements in understanding and in the care and management of those affected or at risk.RAISING AWARENESS of the condition
Activities & Mission
The SUPPORT of those affected by Noonan Syndrome and related conditions (on the Ras/MAPK Pathway) by events, social media, publications etc.RESEARCH to advance improvements in understanding and in the care and management of those affected or at risk.RAISING AWARENESS of the condition
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £48,067 | £81,393 | 0 / 5 | |||
| 2024 | £30,427 | £48,332 | 0 / 10 | |||
| 2023 | £59,898 | £80,474 | 0 / 5 | |||
| 2022 | £63,260 | £39,070 | 0 / 2 | |||
| 2021 | £66,296 | £32,321 | 0 / 26 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Noonan Syndrome Association
What does Noonan Syndrome Association do?
The SUPPORT of those affected by Noonan Syndrome and related conditions (on the Ras/MAPK Pathway) by events, social media, publications etc.RESEARCH to advance improvements in understanding and in the care and management of those affected or at risk.RAISING AWARENESS of the condition
How much income did Noonan Syndrome Association report in 2025?
Noonan Syndrome Association reported total income of £48k and reported expenditure of £81k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Noonan Syndrome Association registered as a charity?
Noonan Syndrome Association was registered with the Charity Commission for England and Wales on 3 March 2011 as charity number 1140671. It has been registered for 15 years.
Who runs Noonan Syndrome Association?
Noonan Syndrome Association is governed by a board of 10 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Noonan Syndrome Association operate?
Noonan Syndrome Association operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is Noonan Syndrome Association a registered charity?
Yes — Noonan Syndrome Association is a registered charity in England and Wales, charity number 1140671.
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Registry Information
Trustees
Also Known As
- Nsa
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated