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Nystagmus Network

The Nystagmus Network provides information and support to people affected by nystagmus, raises awareness of this complex condition, and funds research.

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Activities & Mission

The Nystagmus Network provides information and support to people affected by nystagmus, raises awareness of this complex condition, and funds research.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£160,052
Latest Expenditure
£108,595

Financial Efficiency

Overall Efficiency 67.8%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 67.8%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£160,052
£108,5950 / 11
2024
£97,419
£116,0740 / 5
2023
£122,841
£68,6320 / 8
2022
£94,707
£95,9270 / 5
2021
£88,702
£99,6880 / 5

Staff column shows: Employees / Volunteers

Frequently asked questions about Nystagmus Network

What does Nystagmus Network do?

The Nystagmus Network provides information and support to people affected by nystagmus, raises awareness of this complex condition, and funds research.

How much income did Nystagmus Network report in 2025?

Nystagmus Network reported total income of £160k and reported expenditure of £109k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

When was Nystagmus Network registered as a charity?

Nystagmus Network was registered with the Charity Commission for England and Wales on 29 October 2018 as charity number 1180450. It has been registered for 8 years.

Who runs Nystagmus Network?

Nystagmus Network is governed by a board of 13 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Nystagmus Network operate?

Nystagmus Network operates in England And Wales, as recorded in its Charity Commission filing.

Is Nystagmus Network a registered charity?

Yes — Nystagmus Network is a registered charity in England and Wales, charity number 1180450.

Details

Address
6 Lancaster Gardens
KINGSTON UPON THAMES
Surrey
KT2 5NL
Registration Date
29 October 2018
Status
Registered

Registry Information

Organisation Number
5129106
Charity Number
1180450

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Trustees

Andrew Charles McFarlane
David John Parfett
Dr Harshal Kubavat
Dr John Symeon Vekinis
Hannah Donnelly
Karen Ann Chu
Mari McLellan
PETER JAMES GREENWOOD
RICHARD GELLER
Also governs 1 other charity
VICKY PITMAN
VIVIEN MARY JONES
Also governs 1 other charity

Data & trust

Register data refreshed
14 May 2026
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