Pathfinders Neuromuscular Alliance
Also known as: Dmd Pathfinders
Our main activity is to provide advice and information to adults living with Muscular Dystrophy and related neuromuscular conditions via information events, guides and resources, and peer support activity. We also raise awareness of issues facing adults with neuromuscular conditions and provide advice on health research committees and steering groups
Activities & Mission
Our main activity is to provide advice and information to adults living with Muscular Dystrophy and related neuromuscular conditions via information events, guides and resources, and peer support activity. We also raise awareness of issues facing adults with neuromuscular conditions and provide advice on health research committees and steering groups
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £271,413 | £218,208 | 0 / 1 | |||
| 2024 | £232,201 | £180,255 | 0 / 25 | |||
| 2023 | £180,097 | £171,817 | 0 / 12 | |||
| 2022 | £244,062 | £135,374 | 0 / 10 | |||
| 2021 | £86,589 | £57,232 | 0 / 29 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Pathfinders Neuromuscular Alliance
What does Pathfinders Neuromuscular Alliance do?
Our main activity is to provide advice and information to adults living with Muscular Dystrophy and related neuromuscular conditions via information events, guides and resources, and peer support activity. We also raise awareness of issues facing adults with neuromuscular conditions and provide advice on health research committees and steering groups
How much income did Pathfinders Neuromuscular Alliance report in 2025?
Pathfinders Neuromuscular Alliance reported total income of £271k and reported expenditure of £218k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Pathfinders Neuromuscular Alliance registered as a charity?
Pathfinders Neuromuscular Alliance was registered with the Charity Commission for England and Wales on 21 February 2014 as charity number 1155884. It has been registered for 12 years.
Who runs Pathfinders Neuromuscular Alliance?
Pathfinders Neuromuscular Alliance is governed by a board of 4 trustees. The chair of trustees is Sarah Rose. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Pathfinders Neuromuscular Alliance operate?
Pathfinders Neuromuscular Alliance operates across 2 areas: Scotland and England And Wales.
Is Pathfinders Neuromuscular Alliance a registered charity?
Yes — Pathfinders Neuromuscular Alliance is a registered charity in England and Wales, charity number 1155884.
Details
HAILSHAM
East Sussex
BN27 3AH
Registry Information
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Also Known As
- Dmd Pathfinders
Data & trust
- Register data refreshed
- 14 May 2026
- Methodology
- How metrics are calculated