Phelan-Mcdermid Syndrome Foundation UK
Also known as: Pmsf UK
Relief of the needs of people who have been diagnosed with PMS and their families in the UK and Ireland ? in particular, but not exclusively, by providing support, family days, information, financial grants for different therapies for the person with the syndrome and research endorsed by the international Phelan-McDermid Syndrome Foundation
Activities & Mission
Relief of the needs of people who have been diagnosed with PMS and their families in the UK and Ireland ? in particular, but not exclusively, by providing support, family days, information, financial grants for different therapies for the person with the syndrome and research endorsed by the international Phelan-McDermid Syndrome Foundation
Grants
Phelan-Mcdermid Syndrome Foundation UK is a grant-making charity: making grants is its main activity.
- Gives grants to
- individuals
- Total spending (2025)
- £54,138
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- children and young people and people with disabilities
- What it supports
- disability
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Local Authority
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £64,700 | £54,138 | 0 / 9 | |||
| 2024 | £63,259 | £103,738 | 0 / 6 | |||
| 2023 | £89,017 | £60,857 | 0 / 12 | |||
| 2022 | £94,538 | £60,559 | 0 / 7 | |||
| 2021 | £43,749 | £33,346 | 0 / 5 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Phelan-Mcdermid Syndrome Foundation UK
What does Phelan-Mcdermid Syndrome Foundation UK do?
Relief of the needs of people who have been diagnosed with PMS and their families in the UK and Ireland ? in particular, but not exclusively, by providing support, family days, information, financial grants for different therapies for the person with the syndrome and research endorsed by the international Phelan-McDermid Syndrome Foundation
How much income did Phelan-Mcdermid Syndrome Foundation UK report in 2025?
Phelan-Mcdermid Syndrome Foundation UK reported total income of £65k and reported expenditure of £54k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Phelan-Mcdermid Syndrome Foundation UK registered as a charity?
Phelan-Mcdermid Syndrome Foundation UK was registered with the Charity Commission for England and Wales on 10 June 2014 as charity number 1157423. It has been registered for 12 years.
Who runs Phelan-Mcdermid Syndrome Foundation UK?
Phelan-Mcdermid Syndrome Foundation UK is governed by a board of 6 trustees. The chair of trustees is ALISON JANE TURNER. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Phelan-Mcdermid Syndrome Foundation UK operate?
Phelan-Mcdermid Syndrome Foundation UK operates across 4 areas: Ireland, Northern Ireland, Scotland and Camden.
Is Phelan-Mcdermid Syndrome Foundation UK a registered charity?
Yes — Phelan-Mcdermid Syndrome Foundation UK is a registered charity in England and Wales, charity number 1157423.
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Registry Information
Trustees
Also Known As
- Pmsf UK
Data & trust
- Register data refreshed
- 9 November 2026
- Methodology
- How metrics are calculated