Pitt Hopkins UK
Also known as: Pitt Hopkins Syndrome UK
Pitt Hopkins UK aims to raise awareness of Pitt-Hopkins Syndrome (PTHS ), particularly among the health professionals, to support and advocate for families while delivering the latest information about PTHS.Pitt Hopkins UK also hopes to be able to fund some research one day particularly into the breathing anomalies that many of the children and adults exhibit
Activities & Mission
Pitt Hopkins UK aims to raise awareness of Pitt-Hopkins Syndrome (PTHS ), particularly among the health professionals, to support and advocate for families while delivering the latest information about PTHS.Pitt Hopkins UK also hopes to be able to fund some research one day particularly into the breathing anomalies that many of the children and adults exhibit
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £22,915 | £4,312 | 0 / 1 | |||
| 2024 | £34,473 | £5,740 | 0 / 1 | |||
| 2023 | £25,155 | £2,159 | 0 / 2 | |||
| 2022 | £36,088 | £8,012 | 0 / 2 | |||
| 2021 | £34,383 | £10,684 | 0 / 1 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Pitt Hopkins UK
What does Pitt Hopkins UK do?
Pitt Hopkins UK aims to raise awareness of Pitt-Hopkins Syndrome (PTHS ), particularly among the health professionals, to support and advocate for families while delivering the latest information about PTHS.Pitt Hopkins UK also hopes to be able to fund some research one day particularly into the breathing anomalies that many of the children and adults exhibit
How much income did Pitt Hopkins UK report in 2025?
Pitt Hopkins UK reported total income of £23k and reported expenditure of £4k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Pitt Hopkins UK registered as a charity?
Pitt Hopkins UK was registered with the Charity Commission for England and Wales on 17 May 2016 as charity number 1167153. It has been registered for 10 years.
Who runs Pitt Hopkins UK?
Pitt Hopkins UK is governed by a board of 6 trustees. The chair of trustees is SUE ROUTLEDGE. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Pitt Hopkins UK operate?
Pitt Hopkins UK operates across 4 areas: Ireland, Northern Ireland, Scotland and England And Wales.
Is Pitt Hopkins UK a registered charity?
Yes — Pitt Hopkins UK is a registered charity in England and Wales, charity number 1167153.
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Registry Information
Trustees
Also Known As
- Pitt Hopkins Syndrome UK
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated