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Proteus Syndrome Foundation UK

The relief of persons with Proteus Syndrome and the relief of their families and carers. The advancement of the education of the public in the subject of proteus syndrome. The promotion of research in to the cause and treatment of Proteus Syndrome ensuring that useful results are published

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Activities & Mission

The relief of persons with Proteus Syndrome and the relief of their families and carers. The advancement of the education of the public in the subject of proteus syndrome. The promotion of research in to the cause and treatment of Proteus Syndrome ensuring that useful results are published

Grants

Proteus Syndrome Foundation UK makes grants as part of its work.

Gives grants to
individuals
Total spending
£15,496
Only charities with income over £500,000 file a separate grants figure.
Who it helps
children and young people and people with disabilities
What it supports
general charitable purposes, education and training, the advancement of health or the saving of lives and disability

As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.

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Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£7,448
Latest Expenditure
£15,496

Financial Efficiency

Expenditure Ratio 208.1%
Expenditure as % of income

Frequently asked questions about Proteus Syndrome Foundation UK

What does Proteus Syndrome Foundation UK do?

The relief of persons with Proteus Syndrome and the relief of their families and carers. The advancement of the education of the public in the subject of proteus syndrome. The promotion of research in to the cause and treatment of Proteus Syndrome ensuring that useful results are published

When was Proteus Syndrome Foundation UK registered as a charity?

Proteus Syndrome Foundation UK was registered with the Charity Commission for England and Wales on 14 October 1999 as charity number 1077796. It has been registered for 27 years.

Who runs Proteus Syndrome Foundation UK?

Proteus Syndrome Foundation UK is governed by a board of 3 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does Proteus Syndrome Foundation UK operate?

Proteus Syndrome Foundation UK operates in England And Wales, as recorded in its Charity Commission filing.

Is Proteus Syndrome Foundation UK a registered charity?

Yes — Proteus Syndrome Foundation UK is a registered charity in England and Wales, charity number 1077796.

Details

Contact (address, email, phone)
Registration Date
14 October 1999
Status
Registered

Registry Information

Organisation Number
3964150
Charity Number
1077796

Trustees

AMANDA SUMMERS
DEBRA LYNN MILTON
TRACEY WHITEWOOD-NEAL

Data & trust

Register data refreshed
26 October 2026
Report a data issue