Research Sma
Also known as: Rally Round Rupert
To relieve the need and protect the health of children and their families affected by Spinal Muscular Atrophy (SMA) throughout England & Wales for the public benefit by:a. Working to improve the understanding and knowledge of Spinal Muscular Atrophy (SMA) among the public.b. Providing financial support to further advance clinical research into Spinal Muscular Atrophy (SMA).
Activities & Mission
To relieve the need and protect the health of children and their families affected by Spinal Muscular Atrophy (SMA) throughout England & Wales for the public benefit by:a. Working to improve the understanding and knowledge of Spinal Muscular Atrophy (SMA) among the public.b. Providing financial support to further advance clinical research into Spinal Muscular Atrophy (SMA).
Grants
Research Sma is a grant-making charity: making grants is its main activity.
- Total spending (2026)
- £21,148
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- children and young people and people with disabilities
- What it supports
- disability
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2026.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2026 | £134,454 | £21,148 | 0 / 0 | |||
| 2025 | £135,566 | £175,148 | 0 / 25 | |||
| 2024 | £188,798 | £5,724 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Research Sma
What does Research Sma do?
To relieve the need and protect the health of children and their families affected by Spinal Muscular Atrophy (SMA) throughout England & Wales for the public benefit by:a. Working to improve the understanding and knowledge of Spinal Muscular Atrophy (SMA) among the public.b. Providing financial support to further advance clinical research into Spinal Muscular Atrophy (SMA).
How much income did Research Sma report in 2026?
Research Sma reported total income of £134k and reported expenditure of £21k for the financial year ending 2026, based on the most recent annual return filed with the Charity Commission.
When was Research Sma registered as a charity?
Research Sma was registered with the Charity Commission for England and Wales on 25 January 2023 as charity number 1201716. It has been registered for 3 years.
Who runs Research Sma?
Research Sma is governed by a board of 6 trustees. The chair of trustees is George Alec Mosey. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Research Sma operate?
Research Sma operates in England And Wales, as recorded in its Charity Commission filing.
Is Research Sma a registered charity?
Yes — Research Sma is a registered charity in England and Wales, charity number 1201716.
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Registry Information
Trustees
Also Known As
- Rally Round Rupert
Data & trust
- Register data refreshed
- 26 October 2026
- Methodology
- How metrics are calculated