Ring20 Research And Support UK CIO
We provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy.We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease.
Activities & Mission
We provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy.We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £37,103 | £35,758 | 0 / 4 | |||
| 2024 | £50,152 | £23,341 | 0 / 10 | |||
| 2023 | £40,340 | £45,324 | 0 / 4 | |||
| 2022 | £40,476 | £32,453 | 0 / 7 | |||
| 2021 | £43,839 | £12,779 | 0 / 14 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Ring20 Research And Support UK CIO
What does Ring20 Research And Support UK CIO do?
We provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy.We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease.
How much income did Ring20 Research And Support UK CIO report in 2025?
Ring20 Research And Support UK CIO reported total income of £37k and reported expenditure of £36k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Ring20 Research And Support UK CIO registered as a charity?
Ring20 Research And Support UK CIO was registered with the Charity Commission for England and Wales on 19 February 2016 as charity number 1165651. It has been registered for 10 years.
Who runs Ring20 Research And Support UK CIO?
Ring20 Research And Support UK CIO is governed by a board of 5 trustees. The chair of trustees is Lydia Elena Hirst. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Ring20 Research And Support UK CIO operate?
Ring20 Research And Support UK CIO operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is Ring20 Research And Support UK CIO a registered charity?
Yes — Ring20 Research And Support UK CIO is a registered charity in England and Wales, charity number 1165651.
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Registry Information
Trustees
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated