ring20 research and support uk cio

Activities & Mission

We provide support and information to individuals, families and health professionals who are affected by, or come into contact with Ring Chromosome 20 Syndrome, or r(20) for short, an ultra-rare disease, the main symptom being difficult to treat epilepsy.We raise funds to help promote research into r(20) to try to improve overall quality of life for those living with the disease.

Fundraising

See where Ring20 Research And Support UK CIO is active and find local fundraising opportunities.

Financial Information