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shwachman diamond syndrome uk

The charity supports children and young people and people with disabilities. Shwachman Diamond Syndrome UK is a registered charity whose purpose is general charitable purposes. It delivers its work by making grants to individuals. The charity is based in Lincoln and operates in England And Wales.


This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public.

Fundraising

See where Shwachman Diamond Syndrome UK is active and find local fundraising opportunities.

Financial Information

Latest Income
£54,760
Latest Expenditure
£65,637

Financial Efficiency

Overall Efficiency 119.9%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 119.9%
Expenditure as % of income

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£54,760£65,6370 / 4
2023£61,691£11,8040 / 5
2022£8,294£00 / 3
2021£28,969£15,4010 / 0
2020£10,645£2,0650 / 0

Staff column shows: Employees / Volunteers