Shwachman Diamond Syndrome UK
Also known as: Sdsuk
To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public.
Activities & Mission
To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public.
Grants
Shwachman Diamond Syndrome UK makes grants as part of its work.
- Gives grants to
- organisations and individuals
- Total spending (2025)
- £25,719
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- children and young people and people with disabilities
- What it supports
- general charitable purposes, education and training, the advancement of health or the saving of lives and disability
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £56,700 | £25,719 | 0 / 3 | |||
| 2024 | £54,760 | £65,637 | 0 / 4 | |||
| 2023 | £61,691 | £11,804 | 0 / 5 | |||
| 2022 | £8,294 | £0 | 0 / 3 | |||
| 2021 | £28,969 | £15,401 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Shwachman Diamond Syndrome UK
What does Shwachman Diamond Syndrome UK do?
To support patients and families in the UK affected by Shwachman-Diamond Syndrome (SDS) by: promoting access to health and educational services for affected patients throughout the UK, supporting research into the pathophysiology of SDS and its current and potential treatment, and providing educational resources and activities about SDS for the benefit of families, professionals and the public.
How much income did Shwachman Diamond Syndrome UK report in 2025?
Shwachman Diamond Syndrome UK reported total income of £57k and reported expenditure of £26k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Shwachman Diamond Syndrome UK registered as a charity?
Shwachman Diamond Syndrome UK was registered with the Charity Commission for England and Wales on 5 November 2015 as charity number 1164269. It has been registered for 11 years.
Who runs Shwachman Diamond Syndrome UK?
Shwachman Diamond Syndrome UK is governed by a board of 3 trustees. The chair of trustees is Andrew Olding. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Shwachman Diamond Syndrome UK operate?
Shwachman Diamond Syndrome UK operates in England And Wales, as recorded in its Charity Commission filing.
Is Shwachman Diamond Syndrome UK a registered charity?
Yes — Shwachman Diamond Syndrome UK is a registered charity in England and Wales, charity number 1164269.
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Claim this listing Learn more about premium profiles See a sample profileDetails
Registry Information
Trustees
Also Known As
- Sdsuk
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated