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stickler syndrome uk

The charity supports children and young people, elderly people, people with disabilities, other charities or voluntary bodies, other defined groups, and the general public. Stickler Syndrome UK is a registered charity whose purpose is general charitable purposes. It delivers its work by providing advocacy, advice, or information. The charity is based in Kent and operates in England And Wales, Scotland, and various other locations.


This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

Principle focus is to provide support, information and signposting for people with Stickler Syndrome across the UK (whether currently diagnosed or not). In addition, we seek to promote awareness amongst medical professionals, government agencies and general public. Communication and activities include website, social media, virtual/physical events, and email/telephone helpline.

Fundraising

See where Stickler Syndrome UK is active and find local fundraising opportunities.

Financial Information

Latest Income
£46,388
Latest Expenditure
£32,619

Financial Efficiency

Overall Efficiency 70.3%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 70.3%
Expenditure as % of income

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£46,388£32,6190 / 3
2023£11,882£8,7010 / 7
2022£10,385£10,6820 / 9

Staff column shows: Employees / Volunteers

Details

Address
30 Juniper Close
MAIDSTONE
Kent
ME16 0XP
Registration Date
28 January 1997
Status
Registered

Registry Information

Organisation Number
1060421
Charity Number
1060421

Trustees

Elaine Bruley
Ian Ernest Joslin
Sarah Catherine Maybourne

Also Known As

  • DAVID PITCHER TRUST FOR YOUNG PERSONS
  • STICKLER SYNDROME CHARITABLE TRUST
  • STICKLER SYNDROME SUPPORT GROUP