Stickler Syndrome UK
Also known as: Stickler Syndrome Support Group, David Pitcher Trust for Young Persons, Stickler Syndrome Charitable Trust
Principle focus is to provide support, information and signposting for people with Stickler Syndrome across the UK (whether currently diagnosed or not). In addition, we seek to promote awareness amongst medical professionals, government agencies and general public. Communication and activities include website, social media, virtual/physical events, and email/telephone helpline.
Activities & Mission
Principle focus is to provide support, information and signposting for people with Stickler Syndrome across the UK (whether currently diagnosed or not). In addition, we seek to promote awareness amongst medical professionals, government agencies and general public. Communication and activities include website, social media, virtual/physical events, and email/telephone helpline.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £42,754 | £57,289 | 0 / 6 | |||
| 2024 | £46,388 | £32,619 | 0 / 3 | |||
| 2023 | £11,882 | £8,701 | 0 / 7 | |||
| 2022 | £10,385 | £10,682 | 0 / 9 |
Staff column shows: Employees / Volunteers
Frequently asked questions about Stickler Syndrome UK
What does Stickler Syndrome UK do?
Principle focus is to provide support, information and signposting for people with Stickler Syndrome across the UK (whether currently diagnosed or not). In addition, we seek to promote awareness amongst medical professionals, government agencies and general public. Communication and activities include website, social media, virtual/physical events, and email/telephone helpline.
How much income did Stickler Syndrome UK report in 2025?
Stickler Syndrome UK reported total income of £43k and reported expenditure of £57k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was Stickler Syndrome UK registered as a charity?
Stickler Syndrome UK was registered with the Charity Commission for England and Wales on 28 January 1997 as charity number 1060421. It has been registered for 29 years.
Who runs Stickler Syndrome UK?
Stickler Syndrome UK is governed by a board of 3 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does Stickler Syndrome UK operate?
Stickler Syndrome UK operates across 4 areas: Ireland, Northern Ireland, Scotland and England And Wales.
Is Stickler Syndrome UK a registered charity?
Yes — Stickler Syndrome UK is a registered charity in England and Wales, charity number 1060421.
Details
MAIDSTONE
Kent
ME16 0XP
Registry Information
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Also governs 1 other charity
Also Known As
- Stickler Syndrome Support Group
- David Pitcher Trust for Young Persons
- Stickler Syndrome Charitable Trust
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated