The 1p36 Family Trust
Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.
Activities & Mission
Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
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Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £20,777 | £25,212 | 0 / 3 | |||
| 2024 | £16,812 | £12,439 | 0 / 2 | |||
| 2023 | £13,404 | £4,602 | 0 / 1 | |||
| 2022 | £10,644 | £15,145 | 0 / 8 | |||
| 2021 | £3,736 | £576 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The 1p36 Family Trust
What does The 1p36 Family Trust do?
Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.
How much income did The 1p36 Family Trust report in 2025?
The 1p36 Family Trust reported total income of £21k and reported expenditure of £25k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was The 1p36 Family Trust registered as a charity?
The 1p36 Family Trust was registered with the Charity Commission for England and Wales on 12 February 2019 as charity number 1181988. It has been registered for 7 years.
Who runs The 1p36 Family Trust?
The 1p36 Family Trust is governed by a board of 3 trustees. The chair of trustees is REBECCA LOUISE ROLLESTON. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The 1p36 Family Trust operate?
The 1p36 Family Trust operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is The 1p36 Family Trust a registered charity?
Yes — The 1p36 Family Trust is a registered charity in England and Wales, charity number 1181988.
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Registry Information
Trustees
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated