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the 1p36 family trust

The charity supports people with disabilities. The 1p36 Family Trust is a registered charity whose purpose is the advancement of health or the saving of lives. It delivers its work by providing services. The charity is based in Kent and operates in England And Wales, Scotland, and Northern Ireland.


This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

Provides support to children and adults affected by 1p36 deletion syndrome and their families in the UK, in particular, but not exclusively, by arranging a conference every other year to share research and practice concerning management of symptoms, treatment and sharing educational content about 1p36 deletion syndrome.

Fundraising

See where The 1p36 Family Trust is active and find local fundraising opportunities.

Financial Information

Latest Income
£16,812
Latest Expenditure
£12,439

Financial Efficiency

Overall Efficiency 74.0%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 74.0%
Expenditure as % of income

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£16,812£12,4390 / 2
2023£13,404£4,6020 / 1
2022£10,644£15,1450 / 8
2021£3,736£5760 / 0
2020£21,307£7,1840 / 4

Staff column shows: Employees / Volunteers