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The Brittle Bone Society

The Brittle Bone Society (BBS) exists to support those living with Osteogenesis Imperfecta (OI). Our core purposes are to: provide information, advice support and equipment to anyone affected by OI; build public awareness of the condition and increase the profile of the BBS in the NHS service and general population; promote the BBS to hospitals,support groups, individuals and anyone affected by OI

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Activities & Mission

The Brittle Bone Society (BBS) exists to support those living with Osteogenesis Imperfecta (OI). Our core purposes are to: provide information, advice support and equipment to anyone affected by OI; build public awareness of the condition and increase the profile of the BBS in the NHS service and general population; promote the BBS to hospitals,support groups, individuals and anyone affected by OI

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£0
Latest Expenditure
£0

Financial Efficiency

Program Ratio 41.2%
% of income going directly to charitable activities
Overall Efficiency 83.1%
% of expenditure going to programs (vs overhead)
Administrative Ratio 16.9%
Overhead (fundraising + governance) as % of total expenditure

Latest Financial Breakdown

Income Sources

Donations & Legacies £468,653
Charitable Activities £0
Other Trading £40,972
Investments £38
Other Income £0

Expenditure Categories

Charitable Expenditure £209,873
Raising Funds £42,690
Governance £0
Grants to Institutions £0
Other Expenditure £0

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2022.

One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2022
£509,663
£252,563£209,873£618,588£581,1314 / 20
2021
£191,770
£203,2580 / 20

Staff column shows: Employees / Volunteers

Frequently asked questions about The Brittle Bone Society

What does The Brittle Bone Society do?

The Brittle Bone Society (BBS) exists to support those living with Osteogenesis Imperfecta (OI). Our core purposes are to: provide information, advice support and equipment to anyone affected by OI; build public awareness of the condition and increase the profile of the BBS in the NHS service and general population; promote the BBS to hospitals,support groups, individuals and anyone affected by OI

How much income did The Brittle Bone Society report in 2022?

The Brittle Bone Society reported total income of £510k and reported expenditure of £253k for the financial year ending 2022, based on the most recent annual return filed with the Charity Commission.

When was The Brittle Bone Society registered as a charity?

The Brittle Bone Society was registered with the Charity Commission for England and Wales on 13 October 1976 as charity number 272100. It has been registered for 50 years.

Who runs The Brittle Bone Society?

The Brittle Bone Society is governed by a board of 10 trustees. The chair of trustees is ELAINE HEALEY. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does The Brittle Bone Society operate?

The Brittle Bone Society operates across 4 areas: Ireland, Northern Ireland, Scotland and England And Wales.

Is The Brittle Bone Society a registered charity?

Yes — The Brittle Bone Society is a registered charity in England and Wales, charity number 272100.

Details

Address
BRITTLE BONE SOCIETY
30 GUTHRIE STREET
DUNDEE
DD1 5BS
Registration Date
13 October 1976
Status
Registered

Registry Information

Organisation Number
272100
Charity Number
272100

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Trustees

ELAINE HEALEY Chair
ANGELA STEWART BA HONS
Dominic Hyams
Elizabeth Robertson
JOHN PHILLIPS
Also governs 1 other charity
Professor Margaret Smith OBE
Professor Nick Bishop
Thines Ganeshamoorthy
YVONNE GRANT

Sectors & Classifications

Data & trust

Register data refreshed
14 May 2026
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