The Charlie Gard Foundation
We support families affected by mitochondrial disease offering services to aid a better quality of life, and fund research into viable treatments for this currently incurable disease. We aim to raise awareness for mitochondrial disease within the general public through a variety of events, and support patients by connecting them to the correct support networks within the mitochondrial community.
Activities & Mission
We support families affected by mitochondrial disease offering services to aid a better quality of life, and fund research into viable treatments for this currently incurable disease. We aim to raise awareness for mitochondrial disease within the general public through a variety of events, and support patients by connecting them to the correct support networks within the mitochondrial community.
Grants
The Charlie Gard Foundation makes grants as part of its work.
- Gives grants to
- organisations and individuals
- Total spending (2025)
- £88,284
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- children and young people, elderly people, other defined groups and the general public
- What it supports
- the advancement of health or the saving of lives and disability
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Learn more about premium profiles See a sample profileAreas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Show all 6 areas of operation Hide areas of operation
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £1,653 | £88,284 | 0 / 0 | |||
| 2024 | £17,312 | £106,701 | 0 / 0 | |||
| 2023 | £36,774 | £206,010 | 0 / 3 | |||
| 2022 | £96,266 | £261,828 | 0 / 3 | |||
| 2021 | £77,841 | £389,264 | 0 / 5 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The Charlie Gard Foundation
What does The Charlie Gard Foundation do?
We support families affected by mitochondrial disease offering services to aid a better quality of life, and fund research into viable treatments for this currently incurable disease. We aim to raise awareness for mitochondrial disease within the general public through a variety of events, and support patients by connecting them to the correct support networks within the mitochondrial community.
How much income did The Charlie Gard Foundation report in 2025?
The Charlie Gard Foundation reported total income of £2k and reported expenditure of £88k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was The Charlie Gard Foundation registered as a charity?
The Charlie Gard Foundation was registered with the Charity Commission for England and Wales on 18 December 2017 as charity number 1176344. It has been registered for 9 years.
Who runs The Charlie Gard Foundation?
The Charlie Gard Foundation is governed by a board of 3 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Charlie Gard Foundation operate?
The Charlie Gard Foundation operates across 6 areas, including Ireland, Italy, Scotland and 3 others. The full list is shown on its profile.
Is The Charlie Gard Foundation a registered charity?
Yes — The Charlie Gard Foundation is a registered charity in England and Wales, charity number 1176344.
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Learn more about premium profiles See a sample profileDetails
Registry Information
Trustees
Data & trust
- Register data refreshed
- 2 November 2026
- Methodology
- How metrics are calculated