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The Cjd Support Network

To provide accessible, plainly written CJD information, advice, emotional and practical support for patients, carers, professionals and those at risk through secondary transmission. Promoting good quality care, support and interagency co-operation. Linking families with similar experience.

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Activities & Mission

To provide accessible, plainly written CJD information, advice, emotional and practical support for patients, carers, professionals and those at risk through secondary transmission. Promoting good quality care, support and interagency co-operation. Linking families with similar experience.

Grants

The Cjd Support Network makes grants as part of its work.

Gives grants to
individuals
Total spending (2025)
£38,640
Only charities with income over £500,000 file a separate grants figure.
Who it helps
children and young people, elderly people and people with disabilities
What it supports
the advancement of health or the saving of lives

As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.

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Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£260,541
Latest Expenditure
£38,640

Financial Efficiency

Expenditure Ratio 14.8%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£260,541
£38,6400 / 0
2024
£101,052
£83,7280 / 10
2023
£61,299
£34,9900 / 8
2022
£35,269
£44,0700 / 6
2021
£57,230
£17,5700 / 5

Staff column shows: Employees / Volunteers

Frequently asked questions about The Cjd Support Network

What does The Cjd Support Network do?

To provide accessible, plainly written CJD information, advice, emotional and practical support for patients, carers, professionals and those at risk through secondary transmission. Promoting good quality care, support and interagency co-operation. Linking families with similar experience.

How much income did The Cjd Support Network report in 2025?

The Cjd Support Network reported total income of £261k and reported expenditure of £39k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

When was The Cjd Support Network registered as a charity?

The Cjd Support Network was registered with the Charity Commission for England and Wales on 23 April 2003 as charity number 1097173. It has been registered for 23 years.

Who runs The Cjd Support Network?

The Cjd Support Network is governed by a board of 9 trustees. The chair of trustees is Richard Sydney Godfrey Knight. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does The Cjd Support Network operate?

The Cjd Support Network operates in England And Wales, as recorded in its Charity Commission filing.

Is The Cjd Support Network a registered charity?

Yes — The Cjd Support Network is a registered charity in England and Wales, charity number 1097173.

Details

Address
CJD Support Network Uk
PO Box 3936
CHESTER
CH1 9NG
Registration Date
23 April 2003
Status
Registered

Registry Information

Organisation Number
3998501
Charity Number
1097173

Trustees

Richard Sydney Godfrey Knight Chair
Andrew Paul TAKOUSHIS
Bethan Rose Marsh
Daniel Michael Schonberg
Dr Diane Louise Ritchie
Elizabeth Amy Hill
Katherine Dahill
Professor Simon Harvey Mead
Sean Kevan Horstead

Data & trust

Register data refreshed
19 October 2026
Report a data issue