The Duchenne Family Support Group
To provide a positive national support network of families affected by Duchenne Muscular Dystrophy and enable families to come together to share ideas and experiences and to enjoy social events.
Activities & Mission
To provide a positive national support network of families affected by Duchenne Muscular Dystrophy and enable families to come together to share ideas and experiences and to enjoy social events.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £51,124 | £44,336 | 0 / 4 | |||
| 2024 | £52,701 | £31,458 | 0 / 1 | |||
| 2023 | £54,965 | £46,901 | 0 / 6 | |||
| 2022 | £54,653 | £55,007 | 0 / 12 | |||
| 2021 | £36,296 | £26,003 | 0 / 2 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The Duchenne Family Support Group
What does The Duchenne Family Support Group do?
To provide a positive national support network of families affected by Duchenne Muscular Dystrophy and enable families to come together to share ideas and experiences and to enjoy social events.
How much income did The Duchenne Family Support Group report in 2025?
The Duchenne Family Support Group reported total income of £51k and reported expenditure of £44k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was The Duchenne Family Support Group registered as a charity?
The Duchenne Family Support Group was registered with the Charity Commission for England and Wales on 18 March 2009 as charity number 1128653. It has been registered for 17 years.
Who runs The Duchenne Family Support Group?
The Duchenne Family Support Group is governed by a board of 8 trustees. The chair of trustees is Dr Stephen Henry Meech. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Duchenne Family Support Group operate?
The Duchenne Family Support Group operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is The Duchenne Family Support Group a registered charity?
Yes — The Duchenne Family Support Group is a registered charity in England and Wales, charity number 1128653.
Details
LONDON
W1H 1DP
Registry Information
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Also governs 2 other charities
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated