The Dystonia Society
Promoting the welfare of people who are afflicted by Dystonia, a neurological movement disorder, via the following activites:Linking people affected by dystonia, including a network of local groupsRaising awareness of dystonia and the SocietyProviding information and supportImproving access to treatment and other services and promoting best practiceProgressing research
Activities & Mission
Promoting the welfare of people who are afflicted by Dystonia, a neurological movement disorder, via the following activites:Linking people affected by dystonia, including a network of local groupsRaising awareness of dystonia and the SocietyProviding information and supportImproving access to treatment and other services and promoting best practiceProgressing research
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £422,337 | £402,567 | 0 / 25 | |||
| 2024 | £692,353 | £321,276 | £245,535 | £702,295 | £410,000 | 5 / 20 |
| 2023 | £277,412 | £285,775 | 0 / 0 | |||
| 2022 | £293,052 | £262,278 | 0 / 30 | |||
| 2021 | £421,975 | £310,100 | 0 / 30 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The Dystonia Society
What does The Dystonia Society do?
Promoting the welfare of people who are afflicted by Dystonia, a neurological movement disorder, via the following activites:Linking people affected by dystonia, including a network of local groupsRaising awareness of dystonia and the SocietyProviding information and supportImproving access to treatment and other services and promoting best practiceProgressing research
How much income did The Dystonia Society report in 2025?
The Dystonia Society reported total income of £422k and reported expenditure of £403k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was The Dystonia Society registered as a charity?
The Dystonia Society was registered with the Charity Commission for England and Wales on 2 June 1997 as charity number 1062595. It has been registered for 29 years.
Who runs The Dystonia Society?
The Dystonia Society is governed by a board of 9 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Dystonia Society operate?
The Dystonia Society operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is The Dystonia Society a registered charity?
Yes — The Dystonia Society is a registered charity in England and Wales, charity number 1062595.
Details
89 ALBERT EMBANKMENT
LONDON
SE1 7TP
Registry Information
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Also governs 1 other charity
Data & trust
- Register data refreshed
- 14 May 2026
- Methodology
- How metrics are calculated