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the dystonia society

The charity supports people with disabilities. The Dystonia Society is a registered charity whose purpose is the advancement of health or the saving of lives. It delivers its work by making grants to individuals. The charity is based in London and operates in England And Wales, Scotland, and Northern Ireland.


This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

Promoting the welfare of people who are afflicted by Dystonia, a neurological movement disorder, via the following activites:Linking people affected by dystonia, including a network of local groupsRaising awareness of dystonia and the SocietyProviding information and supportImproving access to treatment and other services and promoting best practiceProgressing research

Fundraising

See where The Dystonia Society is active and find local fundraising opportunities.

Financial Information

Latest Income
£692,353
Latest Expenditure
£321,276

Financial Efficiency

Program Ratio 35.5%
% of income going directly to charitable activities
Overall Efficiency 76.4%
% of expenditure going to programs (vs overhead)
Administrative Ratio 26.5%
Overhead (fundraising + governance) as % of total expenditure

Latest Financial Breakdown

Income Sources

Donations & Legacies £417,059
Charitable Activities £264,418
Other Trading £1,958
Investments £8,918
Other Income £0

Expenditure Categories

Charitable Expenditure £245,535
Raising Funds £75,741
Governance £9,411
Grants to Institutions £0
Other Expenditure £0

Financial Trend

Annual Returns

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024£692,353£321,276£245,535£702,295£410,0005 / 20
2023£277,412£285,7750 / 0
2022£293,052£262,2780 / 30
2021£421,975£310,1000 / 30
2020£221,737£272,4460 / 50

Staff column shows: Employees / Volunteers

Details

Address
3rd. FLOOR
89 ALBERT EMBANKMENT
LONDON
SE1 7TP
Registration Date
2 June 1997
Status
Registered

Registry Information

Organisation Number
3939453
Charity Number
1062595

Trustees

Penny Ritchie-Calder
Timothy John Gannicliffe
Robert Harold William Semple
Ross Grant
Dr Amit Batla
Emily Birden
Qamar Khan MBE
Ntonella Macerolla
Sophie Eleanor Norman
Fermanda Perez