The Ehlers-Danlos Society
Working to provide learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for EDS & HDS population. A community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by EDS, HSD and related conditions.
Activities & Mission
Working to provide learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for EDS & HDS population. A community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by EDS, HSD and related conditions.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.
The Commission record shows this related event on the register:
- Asset transfer in in 2019 — a related charity (organisation 3010118)
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £1,552,526 | £1,409,241 | £1,398,223 | £200,179 | £0 | 20 / 0 |
| 2024 | £1,166,070 | £1,140,663 | £1,130,091 | £56,894 | £0 | 14 / 0 |
| 2023 | £1,217,571 | £1,217,063 | £1,208,663 | £31,487 | £0 | 12 / 0 |
| 2022 | £598,909 | £578,647 | £533,539 | £30,979 | £0 | 9 / 0 |
| 2021 | £429,673 | £499,547 | 0 / 0 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The Ehlers-Danlos Society
What does The Ehlers-Danlos Society do?
Working to provide learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for EDS & HDS population. A community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by EDS, HSD and related conditions.
How much income did The Ehlers-Danlos Society report in 2025?
The Ehlers-Danlos Society reported total income of £1.55m and reported expenditure of £1.41m for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was The Ehlers-Danlos Society registered as a charity?
The Ehlers-Danlos Society was registered with the Charity Commission for England and Wales on 4 December 2018 as charity number 1180984. It has been registered for 8 years.
Who runs The Ehlers-Danlos Society?
The Ehlers-Danlos Society is governed by a board of 11 trustees. The chair of trustees is Susan Hawkins. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Ehlers-Danlos Society operate?
The Ehlers-Danlos Society operates in England And Wales, as recorded in its Charity Commission filing.
Is The Ehlers-Danlos Society a registered charity?
Yes — The Ehlers-Danlos Society is a registered charity in England and Wales, charity number 1180984.
Details
35-37 Ludgate Hill
London
EC4M 7JN
Registry Information
Is this your charity?
Add your logo, photos and tell the story behind the numbers in your own words. Free for our first 50 launch partners.
Claim this listing Learn more about premium profilesTrustees
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated