the ehlers-danlos society

The charity supports people with disabilities. The Ehlers-Danlos Society is a registered charity whose purpose is education and training. It delivers its work by providing services. The charity is based in London and operates in England And Wales.

This page summarises publicly available information about the charity, including its activities, beneficiaries, and registration details, based on official records.

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Activities & Mission

Working to provide learning conferences, collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for EDS & HDS population. A community of individuals, caregivers, healthcare professionals, and supporters, dedicated to saving and improving the lives of those affected by EDS, HSD and related conditions.

Fundraising

See where The Ehlers-Danlos Society is active and find local fundraising opportunities.

Region

England And Wales

Financial Information

Latest Income

£1,166,070

Latest Expenditure

£1,140,663

Financial Efficiency

Program Ratio 96.9%

% of income going directly to charitable activities

Overall Efficiency 99.1%

% of expenditure going to programs (vs overhead)

Administrative Ratio 0.9%

Overhead (fundraising + governance) as % of total expenditure

Latest Financial Breakdown

Income Sources

Donations & Legacies £1,166,070

Charitable Activities £0

Other Trading £0

Investments £0

Other Income £0

Expenditure Categories

Charitable Expenditure £1,130,091

Raising Funds £0

Governance £10,572

Grants to Institutions £176,500

Other Expenditure £10,572

Financial Trend

Annual Returns

Financial Year	Income	Expenditure	Charitable Spending	Net Assets	Reserves	Staff
2024	£1,166,070	£1,140,663	£1,130,091	£56,894	£0	14 / 0
2023	£1,217,571	£1,217,063	£1,208,663	£31,487	£0	12 / 0
2022	£598,909	£578,647	£533,539	£30,979	£0	9 / 0
2021	£429,673	£499,547				0 / 0
2020	£285,596	£215,033				0 / 0