The Ehlers-Danlos Support UK
Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE'
Activities & Mission
Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE'
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £434,770 | £392,489 | 0 / 85 | |||
| 2024 | £380,301 | £428,558 | 0 / 85 | |||
| 2023 | £423,719 | £537,080 | 0 / 70 | |||
| 2022 | £483,707 | £496,377 | 0 / 70 | |||
| 2021 | £406,887 | £405,498 | 0 / 65 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The Ehlers-Danlos Support UK
What does The Ehlers-Danlos Support UK do?
Key objectives for the Charity include providing support and guidance to members; growing the membership; increasing awareness of the condition and the charity both amongst the medical community and the general public; promoting/encouraging medical research; and fundraising. 'MAKING OUR INVISIBLE VISIBLE'
How much income did The Ehlers-Danlos Support UK report in 2025?
The Ehlers-Danlos Support UK reported total income of £435k and reported expenditure of £392k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was The Ehlers-Danlos Support UK registered as a charity?
The Ehlers-Danlos Support UK was registered with the Charity Commission for England and Wales on 13 May 2014 as charity number 1157027. It has been registered for 12 years.
Who runs The Ehlers-Danlos Support UK?
The Ehlers-Danlos Support UK is governed by a board of 11 trustees. The chair of trustees is Charlotte Emily Williams. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Ehlers-Danlos Support UK operate?
The Ehlers-Danlos Support UK operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is The Ehlers-Danlos Support UK a registered charity?
Yes — The Ehlers-Danlos Support UK is a registered charity in England and Wales, charity number 1157027.
Details
45-55 Commercial Street
London
E1 6BD
Registry Information
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Sectors & Classifications
Data & trust
- Register data refreshed
- 14 May 2026
- Methodology
- How metrics are calculated