The Fragile X Society
Fragile X is a family of inherited genetic conditions, including Fragile X Syndrome. We provide information and practical guidance to support and empower individuals and families living with Fragile X We educate and inform public and professionals about Fragile X, to raise awareness and understanding and improve careWe encourage and publicise research into Fragile X
Activities & Mission
Fragile X is a family of inherited genetic conditions, including Fragile X Syndrome. We provide information and practical guidance to support and empower individuals and families living with Fragile X We educate and inform public and professionals about Fragile X, to raise awareness and understanding and improve careWe encourage and publicise research into Fragile X
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Country
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £144,935 | £168,346 | 0 / 10 | |||
| 2024 | £133,582 | £147,224 | 0 / 0 | |||
| 2023 | £137,695 | £162,967 | 0 / 0 | |||
| 2022 | £205,521 | £127,654 | 0 / 20 | |||
| 2021 | £148,121 | £120,841 | 0 / 15 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The Fragile X Society
What does The Fragile X Society do?
Fragile X is a family of inherited genetic conditions, including Fragile X Syndrome. We provide information and practical guidance to support and empower individuals and families living with Fragile X We educate and inform public and professionals about Fragile X, to raise awareness and understanding and improve careWe encourage and publicise research into Fragile X
How much income did The Fragile X Society report in 2025?
The Fragile X Society reported total income of £145k and reported expenditure of £168k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was The Fragile X Society registered as a charity?
The Fragile X Society was registered with the Charity Commission for England and Wales on 3 February 2009 as charity number 1127861. It has been registered for 17 years.
Who runs The Fragile X Society?
The Fragile X Society is governed by a board of 9 trustees. The chair of trustees is Steve Harris. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Fragile X Society operate?
The Fragile X Society operates across 3 areas: Northern Ireland, Scotland and England And Wales.
Is The Fragile X Society a registered charity?
Yes — The Fragile X Society is a registered charity in England and Wales, charity number 1127861.
Details
The Chestnuts
4 Stortford Road
Great Dunmow
Great Du
Registry Information
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Also governs 1 other charity
Sectors & Classifications
Data & trust
- Register data refreshed
- 14 May 2026
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