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The Gary Woodward Dyskeratosis Congenita Trust

Dyskeratosis Congenita is a severe bone marrow failure syndrome which is a genetic condition, affecting children and adults. Our aims are to promote awareness, support and education for the general public and Healthcare professionals via leaflets, telephone support and web page access.

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Activities & Mission

Dyskeratosis Congenita is a severe bone marrow failure syndrome which is a genetic condition, affecting children and adults. Our aims are to promote awareness, support and education for the general public and Healthcare professionals via leaflets, telephone support and web page access.

Grants

The Gary Woodward Dyskeratosis Congenita Trust makes grants as part of its work.

Gives grants to
organisations and individuals
Total spending
£246
Only charities with income over £500,000 file a separate grants figure.
Who it helps
children and young people, elderly people, people with disabilities and the general public
What it supports
general charitable purposes, education and training, the advancement of health or the saving of lives and disability

As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.

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Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£417
Latest Expenditure
£246

Financial Efficiency

Expenditure Ratio 59.0%
Expenditure as % of income

Frequently asked questions about The Gary Woodward Dyskeratosis Congenita Trust

What does The Gary Woodward Dyskeratosis Congenita Trust do?

Dyskeratosis Congenita is a severe bone marrow failure syndrome which is a genetic condition, affecting children and adults. Our aims are to promote awareness, support and education for the general public and Healthcare professionals via leaflets, telephone support and web page access.

When was The Gary Woodward Dyskeratosis Congenita Trust registered as a charity?

The Gary Woodward Dyskeratosis Congenita Trust was registered with the Charity Commission for England and Wales on 5 April 2006 as charity number 1113617. It has been registered for 20 years.

Who runs The Gary Woodward Dyskeratosis Congenita Trust?

The Gary Woodward Dyskeratosis Congenita Trust is governed by a board of 5 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does The Gary Woodward Dyskeratosis Congenita Trust operate?

The Gary Woodward Dyskeratosis Congenita Trust operates in England And Wales, as recorded in its Charity Commission filing.

Is The Gary Woodward Dyskeratosis Congenita Trust a registered charity?

Yes — The Gary Woodward Dyskeratosis Congenita Trust is a registered charity in England and Wales, charity number 1113617.

Details

Contact (address, email, phone)
Registration Date
5 April 2006
Status
Registered

Registry Information

Organisation Number
4021575
Charity Number
1113617

Trustees

Abigail Frances Sinfield
Ben Paul Sinfield
PAUL MELVYN SINFIELD
PROFESSOR INDERJEET DOKAL
ROCHELLE KAY BLAKE

Data & trust

Register data refreshed
26 October 2026
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