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The International Alliance Of Als / MND Associations

The International Alliance of ALS/MND Associations founded in November of 1992 to provide an international community for ALS/MND associations from around the world. Our vision is to engage our members, prospective members and other organizations in sharing resources globally, advancing awareness and supporting people with ALS/MND worldwide.

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Activities & Mission

The International Alliance of ALS/MND Associations founded in November of 1992 to provide an international community for ALS/MND associations from around the world. Our vision is to engage our members, prospective members and other organizations in sharing resources globally, advancing awareness and supporting people with ALS/MND worldwide.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Show all 19 areas of operation

Financial Information

Latest Income
£699,821
Latest Expenditure
£737,463

Financial Efficiency

Program Ratio 0.0%
% of income going directly to charitable activities

Higher than 2% of UK Health charities with income £100K to £1M (sample: 1354). How is this calculated?

Overall Efficiency 0.0%
% of expenditure going to programs (vs overhead)

Higher than 2% of UK Health charities with income £100K to £1M. How is this calculated?

Administrative Ratio 100.0%
Overhead (fundraising + governance) as % of total expenditure

Lower overhead than 0% of UK Health charities with income £100K to £1M. (Lower overhead is generally read as more efficient.) How is this calculated?

Latest Financial Breakdown

Income Sources

Donations & Legacies £29,343
Charitable Activities £662,721
Other Trading £0
Investments £0
Other Income £7,757

Expenditure Categories

Charitable Expenditure £0
Raising Funds £737,463
Governance £0
Grants to Institutions £0
Other Expenditure £0

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.

One or more years show a significant change in income (over ±100%) compared with the prior year. This usually reflects a merger, transfer of activities, restated accounts, or a one-off legacy — not necessarily a real change in operating scale. See the methodology for context.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2025
£699,821
£737,463£0£75,337£75,3370 / 0
2024
£595,025
£693,541£693,541£112,978£112,9781 / 0
2023
£633,871
£585,958£800£211,494£211,4941 / 0
2022
£374,814
£345,5650 / 0
2021
£164,202
£228,1390 / 0

Staff column shows: Employees / Volunteers

Frequently asked questions about The International Alliance Of Als / MND Associations

What does The International Alliance Of Als / MND Associations do?

The International Alliance of ALS/MND Associations founded in November of 1992 to provide an international community for ALS/MND associations from around the world. Our vision is to engage our members, prospective members and other organizations in sharing resources globally, advancing awareness and supporting people with ALS/MND worldwide.

How much income did The International Alliance Of Als / MND Associations report in 2025?

The International Alliance Of Als / MND Associations reported total income of £700k and reported expenditure of £737k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.

How efficient is The International Alliance Of Als / MND Associations?

The International Alliance Of Als / MND Associations has a program ratio of 0.0%, meaning that share of its income goes directly to charitable activities. This is higher than 2% of UK Health charities with income £100K to £1M (sample of 1354 charities). See our methodology for how this is calculated.

When was The International Alliance Of Als / MND Associations registered as a charity?

The International Alliance Of Als / MND Associations was registered with the Charity Commission for England and Wales on 23 February 2000 as charity number 1079504. It has been registered for 26 years.

Who runs The International Alliance Of Als / MND Associations?

The International Alliance Of Als / MND Associations is governed by a board of 12 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does The International Alliance Of Als / MND Associations operate?

The International Alliance Of Als / MND Associations operates across 19 areas, including Argentina, Belgium, Canada and 16 others. The full list is shown on its profile.

Is The International Alliance Of Als / MND Associations a registered charity?

Yes — The International Alliance Of Als / MND Associations is a registered charity in England and Wales, charity number 1079504.

Details

Address
Francis Crick House
6 Summerhouse Road
Moulton Park
Northampton
ENGLAND
NN3 6BJ
Registration Date
23 February 2000
Status
Registered

Registry Information

Organisation Number
3969134
Charity Number
1079504

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Trustees

Clare Sullivan
Evy Reviers
Jennifer Bedford
Jennifer Hjelle
Marcela Santos
Mary Ellen Bench
Nina Riffath Barakzai
Pablo Aquino
Riccardo Zuccarino
Tammy Moore
Valeria Gerbino
Yohei Yomada

Sectors & Classifications

Data & trust

Register data refreshed
14 May 2026
Report a data issue