The Maddi Foundation
We fund research to help develop treatments and hope ultimately to find a cure for Spastic Paraplegia Type 15 or SPG15.We aim to raise awareness of SPG15 disease by connecting clinicians, researchers and patients together and at Public Events.
Activities & Mission
We fund research to help develop treatments and hope ultimately to find a cure for Spastic Paraplegia Type 15 or SPG15.We aim to raise awareness of SPG15 disease by connecting clinicians, researchers and patients together and at Public Events.
Grants
The Maddi Foundation makes grants as part of its work.
- Gives grants to
- organisations
- Total spending (2025)
- £6,332
- Only charities with income over £500,000 file a separate grants figure.
- Who it helps
- the general public
- What it supports
- the advancement of health or the saving of lives
As recorded with the Charity Commission. To ask about applying, use the contact details and check the trustees and latest accounts below.
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Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £13,603 | £6,332 | 0 / 5 | |||
| 2024 | £12,728 | £2,590 | 0 / 2 | |||
| 2023 | £17,515 | £1,691 | 0 / 3 | |||
| 2022 | £10,879 | £1,323 | 0 / 3 | |||
| 2021 | £20,959 | £46,026 | 0 / 2 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The Maddi Foundation
What does The Maddi Foundation do?
We fund research to help develop treatments and hope ultimately to find a cure for Spastic Paraplegia Type 15 or SPG15.We aim to raise awareness of SPG15 disease by connecting clinicians, researchers and patients together and at Public Events.
How much income did The Maddi Foundation report in 2025?
The Maddi Foundation reported total income of £14k and reported expenditure of £6k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was The Maddi Foundation registered as a charity?
The Maddi Foundation was registered with the Charity Commission for England and Wales on 24 August 2017 as charity number 1174374. It has been registered for 9 years.
Who runs The Maddi Foundation?
The Maddi Foundation is governed by a board of 4 trustees. The chair of trustees is CARINA THURGOOD. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Maddi Foundation operate?
The Maddi Foundation operates in England And Wales, as recorded in its Charity Commission filing.
Is The Maddi Foundation a registered charity?
Yes — The Maddi Foundation is a registered charity in England and Wales, charity number 1174374.
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Registry Information
Trustees
Data & trust
- Register data refreshed
- 19 October 2026
- Methodology
- How metrics are calculated