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The National Society For Phenylketonuria (united Kingdom) Limited

Also known as: The National Society for Phenylketonuria and Allied Disorders Limited, The Nspku

The Society exists to provide help and support to people with PKU and their families and carers.We continue to promote the education,medical and welfare of PKU sufferers.

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Activities & Mission

The Society exists to provide help and support to people with PKU and their families and carers.We continue to promote the education,medical and welfare of PKU sufferers.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£202,510
Latest Expenditure
£166,869

Financial Efficiency

Overall Efficiency 82.4%
% of expenditure going to programs (vs overhead)
Expenditure Ratio 82.4%
Expenditure as % of income

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024
£202,510
£166,8690 / 10
2023
£158,065
£136,0970 / 10
2022
£136,649
£114,9690 / 4
2021
£90,060
£79,8100 / 4
2020
£117,637
£93,6060 / 4

Staff column shows: Employees / Volunteers

Frequently asked questions about The National Society For Phenylketonuria (united Kingdom) Limited

What does The National Society For Phenylketonuria (united Kingdom) Limited do?

The Society exists to provide help and support to people with PKU and their families and carers.We continue to promote the education,medical and welfare of PKU sufferers.

How much income did The National Society For Phenylketonuria (united Kingdom) Limited report in 2024?

The National Society For Phenylketonuria (united Kingdom) Limited reported total income of £203k and reported expenditure of £167k for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.

When was The National Society For Phenylketonuria (united Kingdom) Limited registered as a charity?

The National Society For Phenylketonuria (united Kingdom) Limited was registered with the Charity Commission for England and Wales on 16 June 1977 as charity number 273670. It has been registered for 49 years.

Who runs The National Society For Phenylketonuria (united Kingdom) Limited?

The National Society For Phenylketonuria (united Kingdom) Limited is governed by a board of 11 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does The National Society For Phenylketonuria (united Kingdom) Limited operate?

The National Society For Phenylketonuria (united Kingdom) Limited operates across 3 areas: Northern Ireland, Scotland and England And Wales.

Is The National Society For Phenylketonuria (united Kingdom) Limited a registered charity?

Yes — The National Society For Phenylketonuria (united Kingdom) Limited is a registered charity in England and Wales, charity number 273670.

Details

Address
NSPKU (Uk) Ltd
PO Box 862
CHESTERFIELD
Derbyshire
S43 9FF
Registration Date
16 June 1977
Status
Registered

Registry Information

Organisation Number
273670
Charity Number
273670

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Trustees

Amisha Bagri
Anita MacDonald
Caroline Graham
Christopher Cassidy
Dr Emma Vardy
John Skidmore
Kate Learoyd
Paul Duncan McKellar
Sara Louise Noble-Nesbitt
Sarah Youssefi
Tom Chimiak

Sectors & Classifications

Also Known As

  • The National Society for Phenylketonuria and Allied Disorders Limited
  • The Nspku

Data & trust

Register data refreshed
30 July 2026
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