The Neurofibromatosis Association
Also known as: Nfa, The Neuro Foundation, Nerve Tumours UK
The charity's mission is to enable people concerned about neurofibromatosis to find solutions appropriate for them.
Activities & Mission
The charity's mission is to enable people concerned about neurofibromatosis to find solutions appropriate for them.
Areas of Operation
Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.
Region
Financial Information
Financial Efficiency
Latest Financial Breakdown
Income Sources
Expenditure Categories
Financial Trend
Annual Returns
As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2025.
| Financial Year | Income | Expenditure | Charitable Spending | Net Assets | Reserves | Staff |
|---|---|---|---|---|---|---|
| 2025 | £555,411 | £548,010 | £414,222 | £656,018 | £123,466 | 6 / 2 |
| 2024 | £487,431 | £485,887 | 0 / 1 | |||
| 2023 | £456,409 | £424,665 | 0 / 1 | |||
| 2022 | £512,516 | £448,334 | £342,202 | £615,329 | £567,465 | 5 / 1 |
| 2021 | £397,174 | £390,589 | 0 / 1 |
Staff column shows: Employees / Volunteers
Frequently asked questions about The Neurofibromatosis Association
What does The Neurofibromatosis Association do?
The charity's mission is to enable people concerned about neurofibromatosis to find solutions appropriate for them.
How much income did The Neurofibromatosis Association report in 2025?
The Neurofibromatosis Association reported total income of £555k and reported expenditure of £548k for the financial year ending 2025, based on the most recent annual return filed with the Charity Commission.
When was The Neurofibromatosis Association registered as a charity?
The Neurofibromatosis Association was registered with the Charity Commission for England and Wales on 5 January 2000 as charity number 1078790. It has been registered for 26 years.
Who runs The Neurofibromatosis Association?
The Neurofibromatosis Association is governed by a board of 7 trustees. The chair of trustees is Richard Eric Greenway Goode. Trustees are legally responsible for the charity's governance and are listed in full on its profile.
Where does The Neurofibromatosis Association operate?
The Neurofibromatosis Association operates in England And Wales, as recorded in its Charity Commission filing.
Is The Neurofibromatosis Association a registered charity?
Yes — The Neurofibromatosis Association is a registered charity in England and Wales, charity number 1078790.
Details
44 Coombe Lane
London
SW20 0LA
Registry Information
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Also governs 1 other charity
Also governs 2 other charities
Also Known As
- Nfa
- The Neuro Foundation
- Nerve Tumours UK
Data & trust
- Register data refreshed
- 30 July 2026
- Methodology
- How metrics are calculated