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The Society For Mucopolysaccharide Diseases

Also known as: Wicked Genes, Mps Society

THIS IS THE INCORPORATED SUCCESSOR CHARITY TO CHARITY NUMBER 287034, WHICH IS ITS UNINCORPORATED PREDECESSOR.The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by MPS and related diseases throughout the UK.

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Activities & Mission

THIS IS THE INCORPORATED SUCCESSOR CHARITY TO CHARITY NUMBER 287034, WHICH IS ITS UNINCORPORATED PREDECESSOR.The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by MPS and related diseases throughout the UK.

Areas of Operation

Where this charity is registered to operate, as self-declared to the Charity Commission. These are regulatory classifications, not a list of active programmes, and don't necessarily indicate fundraising activity in each location.

Financial Information

Latest Income
£1,934,735
Latest Expenditure
£1,862,072

Financial Efficiency

Program Ratio 63.9%
% of income going directly to charitable activities
Overall Efficiency 66.3%
% of expenditure going to programs (vs overhead)
Administrative Ratio 40.8%
Overhead (fundraising + governance) as % of total expenditure

Latest Financial Breakdown

Income Sources

Donations & Legacies £243,553
Charitable Activities £751,504
Other Trading £864,051
Investments £75,627
Other Income £0

Expenditure Categories

Charitable Expenditure £1,235,421
Raising Funds £626,651
Governance £132,431
Grants to Institutions £81,934
Other Expenditure £0

Financial Trend

Annual Returns

As filed with the Charity Commission for England and Wales. Most recent filing covers the financial year ending 2024.

Financial YearIncomeExpenditureCharitable SpendingNet AssetsReservesStaff
2024
£1,934,735
£1,862,072£1,235,421£2,418,613£743,10232 / 5
2023
£1,812,981
£1,996,359£1,224,852£2,345,950£742,34634 / 0
2022
£1,721,243
£2,010,927£1,256,798£2,529,328£742,84534 / 0
2021
£1,443,246
£1,581,251£983,363£2,819,012£745,34633 / 0
2020
£2,055,446
£1,513,142£779,958£2,414,713£745,48030 / 0

Staff column shows: Employees / Volunteers

Frequently asked questions about The Society For Mucopolysaccharide Diseases

What does The Society For Mucopolysaccharide Diseases do?

THIS IS THE INCORPORATED SUCCESSOR CHARITY TO CHARITY NUMBER 287034, WHICH IS ITS UNINCORPORATED PREDECESSOR.The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by MPS and related diseases throughout the UK.

How much income did The Society For Mucopolysaccharide Diseases report in 2024?

The Society For Mucopolysaccharide Diseases reported total income of £1.93m and reported expenditure of £1.86m for the financial year ending 2024, based on the most recent annual return filed with the Charity Commission.

When was The Society For Mucopolysaccharide Diseases registered as a charity?

The Society For Mucopolysaccharide Diseases was registered with the Charity Commission for England and Wales on 19 August 2011 as charity number 1143472. It has been registered for 15 years.

Who runs The Society For Mucopolysaccharide Diseases?

The Society For Mucopolysaccharide Diseases is governed by a board of 11 trustees. Trustees are legally responsible for the charity's governance and are listed in full on its profile.

Where does The Society For Mucopolysaccharide Diseases operate?

The Society For Mucopolysaccharide Diseases operates in England And Wales, as recorded in its Charity Commission filing.

Is The Society For Mucopolysaccharide Diseases a registered charity?

Yes — The Society For Mucopolysaccharide Diseases is a registered charity in England and Wales, charity number 1143472.

Details

Address
Mps House
Repton Place
White Lion Road
Amersham
HP7 9LP
Registration Date
19 August 2011
Status
Registered

Registry Information

Organisation Number
5021461
Charity Number
1143472

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Trustees

DAVID MAURICE PATTON
Dr FIONA JANE STEWART
Dr GLENN McKee
JUDITH EVANS
Katy Joanne Brown
Philip John Pearson
PROFESSOR BRYAN WINCHESTER
PROFESSOR DERRALYNN ARLENE HUGHES
PROFESSOR SIMON JAMES ROBERT HEALES
Also governs 1 other charity
SARAH BURGESS
WILMA ROBINS

Also Known As

  • Wicked Genes
  • Mps Society

Data & trust

Register data refreshed
30 July 2026
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